IF 1.4 Q4 HEALTH POLICY & SERVICES
Vera Schiewer, Anne Klein, Thilo Dietz, Hildegard Labouvie, Michael Kusch, Hedy Kerek-Bodden, Michael Hallek
{"title":"[Patient involvement using the example of the Innovation Fund project \"Integrated, cross-sectoral Psychooncology\" (isPO)].","authors":"Vera Schiewer, Anne Klein, Thilo Dietz, Hildegard Labouvie, Michael Kusch, Hedy Kerek-Bodden, Michael Hallek","doi":"10.1016/j.zefq.2024.11.004","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>In the German health care system, the participation of patients (patient representatives) and the consideration of their perspectives in all phases of research and care are being increasingly demanded. How appropriate patient participation (participation of patient representatives) can be designed is illustrated by the example of the project on the new form of care titled \"Integrated, cross-sectoral psychooncology nVF-isPOI\" and funded by the Innovation Fund at the Federal Joint Committee.</p><p><strong>Method: </strong>The realization of patient (representative) participation is presented by the example of the isPO project, taking into account the short form of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2). This is done on the basis of the involvement and participation of patients (patient representatives) in research, care and care evaluation, as well as quality development (1) through the Haus der Krebs-Selbsthilfe - Bundesverband e. V. (HKSH-BV), as the consortium and contract partner in conceptual project work, (2) through the participation of cancer survivors in the role of isPO oncoguides, and (3) through the involvement of cancer patients in the evaluation of the nVF-isPO.</p><p><strong>Results: </strong>Through the constant involvement of the HKSH-BV as a consortium partner, the patients' perspective informed the development and implementation of the nVF-isPO at an early stage. The nVF-isPO's isPO-Oncoguide concept, developed in collaboration with the HKSH-BV, made it possible to involve cancer survivors as isPO-Oncoguides in health care. In addition, oncological patients, who are regarded as health benefit recipients in the health care evaluation, were involved in the further development of the quality of care of the nVF-isPO.</p><p><strong>Conclusion: </strong>The involvement and consideration of the expertise of patients (patient representatives) in all phases of development, implementation and evaluation have been realized in the isPO project. The isPO project has been recognized by the HKSH-BV as having a high degree of patient participation; and the nVF-isPO and the concept of the isPO-oncoguide are recognized as relevant, acceptable and of high quality from the perspective of both cancer survivors and cancer patients.</p>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":" ","pages":""},"PeriodicalIF":1.4000,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1016/j.zefq.2024.11.004","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"HEALTH POLICY & SERVICES","Score":null,"Total":0}
引用次数: 0

摘要

背景:在德国医疗保健系统中,患者(患者代表)的参与以及在研究和护理的各个阶段考虑患者观点的要求越来越高。如何设计适当的患者参与(患者代表参与),以联邦联合委员会创新基金资助的名为 "跨部门综合心理肿瘤学 nVF-isPOI "的新型医疗项目为例进行说明:方法:以isPO项目为例,介绍患者(代表)参与的实现情况,同时考虑到《患者和公众参与报告指南》(GRIPP2)的简本。这是在患者(患者代表)参与和参加研究、护理和护理评估以及质量发展的基础上进行的:(1)通过作为项目概念工作的联合体和合同伙伴的Haus der Krebs-Selbsthilfe - Bundesverband e. V. (HKSH-BV),(2)通过癌症幸存者参与isPO肿瘤指南的角色,以及(3)通过癌症患者参与nVF-isPO.Results:结果:通过HKSH-BV作为联盟合作伙伴的持续参与,患者的观点在早期阶段就为nVF-isPO的开发和实施提供了参考。nVF-isPO 的 isPO-Oncoguide 概念是与 HKSH-BV 合作开发的,它使癌症幸存者作为 isPO-Oncoguide 参与医疗保健成为可能。此外,在医疗保健评估中被视为健康受益人的肿瘤患者也参与了 nVF-isPO 医疗保健质量的进一步发展:isPO项目在开发、实施和评估的各个阶段都考虑到了患者(患者代表)的参与和专业知识。isPO项目得到了HKSH-BV的认可,认为患者的参与程度很高;从癌症幸存者和癌症患者的角度来看,nVF-isPO和isPO-oncoguide的概念被认为是相关的、可接受的和高质量的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Patient involvement using the example of the Innovation Fund project "Integrated, cross-sectoral Psychooncology" (isPO)].

Background: In the German health care system, the participation of patients (patient representatives) and the consideration of their perspectives in all phases of research and care are being increasingly demanded. How appropriate patient participation (participation of patient representatives) can be designed is illustrated by the example of the project on the new form of care titled "Integrated, cross-sectoral psychooncology nVF-isPOI" and funded by the Innovation Fund at the Federal Joint Committee.

Method: The realization of patient (representative) participation is presented by the example of the isPO project, taking into account the short form of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2). This is done on the basis of the involvement and participation of patients (patient representatives) in research, care and care evaluation, as well as quality development (1) through the Haus der Krebs-Selbsthilfe - Bundesverband e. V. (HKSH-BV), as the consortium and contract partner in conceptual project work, (2) through the participation of cancer survivors in the role of isPO oncoguides, and (3) through the involvement of cancer patients in the evaluation of the nVF-isPO.

Results: Through the constant involvement of the HKSH-BV as a consortium partner, the patients' perspective informed the development and implementation of the nVF-isPO at an early stage. The nVF-isPO's isPO-Oncoguide concept, developed in collaboration with the HKSH-BV, made it possible to involve cancer survivors as isPO-Oncoguides in health care. In addition, oncological patients, who are regarded as health benefit recipients in the health care evaluation, were involved in the further development of the quality of care of the nVF-isPO.

Conclusion: The involvement and consideration of the expertise of patients (patient representatives) in all phases of development, implementation and evaluation have been realized in the isPO project. The isPO project has been recognized by the HKSH-BV as having a high degree of patient participation; and the nVF-isPO and the concept of the isPO-oncoguide are recognized as relevant, acceptable and of high quality from the perspective of both cancer survivors and cancer patients.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
1.90
自引率
18.20%
发文量
129
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信