Núria Masnou , Anna Quintanas , Carla Planas , Albert Planes
{"title":"安乐死:加泰罗尼亚参照对象经验的混合方法研究","authors":"Núria Masnou , Anna Quintanas , Carla Planas , Albert Planes","doi":"10.1016/j.gaceta.2024.102435","DOIUrl":null,"url":null,"abstract":"<div><h3>Objective</h3><div>To identify strengths and challenges in the provision of assistance in dying (PAM) based on the experiences of the Catalan Health Institute (ICS) euthanasia referents.</div></div><div><h3>Method</h3><div>Mixed-methods study (n<!--> <!-->=<!--> <!-->31), using two closed-ended questionnaires (quantitative analysis) and two structured interviews with open-ended fields (qualitative analysis), self-administered via email. All ICS referents (n<!--> <!-->=<!--> <!-->50) received them. The first questionnaire (n<!--> <!-->=<!--> <!-->31) and interview (n<!--> <!-->=<!--> <!-->12) were addressed to all referents. The second questionnaire (n<!--> <!-->=<!--> <!-->7) and interview (n<!--> <!-->=<!--> <!-->6) were directed only to those who had also directly participated in a PAM. The results were triangulated and are presented as an integrated analysis.</div></div><div><h3>Results</h3><div>From the integration of quantitative and qualitative responses, six thematic blocks emerged: 1) dedication and compensation; 2) training; 3) weak points and difficulties; 4) emotional and psychological impact; 5) considerations on end-of-life issues; and 6) motivations and advice from contacts. From the joint analysis, proposals for improvement were concluded: compensate for the workload that PAM implies, improve training, ensure that conscientious objection is in accordance with the law, and review aspects of the LORE, as procedures, deadlines, interdisciplinarity, ambiguities, and excluded cases. It was established: the usefulness of the referent role; respecting patient autonomy offsets negative emotions in professionals; PAM promotes reflection on the purposes of medicine.</div></div><div><h3>Conclusions</h3><div>Euthanasia referents’ experiences can guide other professionals and suggest guidelines for institutional leaders and health managers.</div></div>","PeriodicalId":12494,"journal":{"name":"Gaceta Sanitaria","volume":"38 ","pages":"Article 102435"},"PeriodicalIF":1.5000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"La eutanasia: un estudio de metodología mixta sobre la experiencia de los referentes en Cataluña\",\"authors\":\"Núria Masnou , Anna Quintanas , Carla Planas , Albert Planes\",\"doi\":\"10.1016/j.gaceta.2024.102435\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objective</h3><div>To identify strengths and challenges in the provision of assistance in dying (PAM) based on the experiences of the Catalan Health Institute (ICS) euthanasia referents.</div></div><div><h3>Method</h3><div>Mixed-methods study (n<!--> <!-->=<!--> <!-->31), using two closed-ended questionnaires (quantitative analysis) and two structured interviews with open-ended fields (qualitative analysis), self-administered via email. All ICS referents (n<!--> <!-->=<!--> <!-->50) received them. The first questionnaire (n<!--> <!-->=<!--> <!-->31) and interview (n<!--> <!-->=<!--> <!-->12) were addressed to all referents. The second questionnaire (n<!--> <!-->=<!--> <!-->7) and interview (n<!--> <!-->=<!--> <!-->6) were directed only to those who had also directly participated in a PAM. The results were triangulated and are presented as an integrated analysis.</div></div><div><h3>Results</h3><div>From the integration of quantitative and qualitative responses, six thematic blocks emerged: 1) dedication and compensation; 2) training; 3) weak points and difficulties; 4) emotional and psychological impact; 5) considerations on end-of-life issues; and 6) motivations and advice from contacts. From the joint analysis, proposals for improvement were concluded: compensate for the workload that PAM implies, improve training, ensure that conscientious objection is in accordance with the law, and review aspects of the LORE, as procedures, deadlines, interdisciplinarity, ambiguities, and excluded cases. It was established: the usefulness of the referent role; respecting patient autonomy offsets negative emotions in professionals; PAM promotes reflection on the purposes of medicine.</div></div><div><h3>Conclusions</h3><div>Euthanasia referents’ experiences can guide other professionals and suggest guidelines for institutional leaders and health managers.</div></div>\",\"PeriodicalId\":12494,\"journal\":{\"name\":\"Gaceta Sanitaria\",\"volume\":\"38 \",\"pages\":\"Article 102435\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Gaceta Sanitaria\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0213911124000931\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Gaceta Sanitaria","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0213911124000931","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
La eutanasia: un estudio de metodología mixta sobre la experiencia de los referentes en Cataluña
Objective
To identify strengths and challenges in the provision of assistance in dying (PAM) based on the experiences of the Catalan Health Institute (ICS) euthanasia referents.
Method
Mixed-methods study (n = 31), using two closed-ended questionnaires (quantitative analysis) and two structured interviews with open-ended fields (qualitative analysis), self-administered via email. All ICS referents (n = 50) received them. The first questionnaire (n = 31) and interview (n = 12) were addressed to all referents. The second questionnaire (n = 7) and interview (n = 6) were directed only to those who had also directly participated in a PAM. The results were triangulated and are presented as an integrated analysis.
Results
From the integration of quantitative and qualitative responses, six thematic blocks emerged: 1) dedication and compensation; 2) training; 3) weak points and difficulties; 4) emotional and psychological impact; 5) considerations on end-of-life issues; and 6) motivations and advice from contacts. From the joint analysis, proposals for improvement were concluded: compensate for the workload that PAM implies, improve training, ensure that conscientious objection is in accordance with the law, and review aspects of the LORE, as procedures, deadlines, interdisciplinarity, ambiguities, and excluded cases. It was established: the usefulness of the referent role; respecting patient autonomy offsets negative emotions in professionals; PAM promotes reflection on the purposes of medicine.
Conclusions
Euthanasia referents’ experiences can guide other professionals and suggest guidelines for institutional leaders and health managers.
期刊介绍:
Gaceta Sanitaria (Health Gazette) is an international journal that accepts articles in Spanish and in English. It is the official scientific journal of the Sociedad Española de Salud Publica y Administración Sanitaria (Spanish Society of Public Health and Health Administration) (SESPAS).
The Journal publishes 6 issues per year on different areas of Public Health and Health Administration, including:
-Applied epidemiology-
Health prevention and promotion-
Environmental health-
International health-
Management and assessment of policies and services-
Health technology assessments-
Health economics.
The editorial process is regulated by a peer review system. It publishes original works, reviews, opinion articles, field and methodology notes, protocols, letters to the editor, editorials, and debates.