让选择发出声音：世界血友病联合会共享决策工具的发展评论。

IF 3 2区医学 Q2 HEMATOLOGY

Haemophilia Pub Date : 2024-12-04 DOI:10.1111/hae.15133

Leonard A. Valentino, Kate Khair

{"title":"让选择发出声音：世界血友病联合会共享决策工具的发展评论。","authors":"Leonard A. Valentino, Kate Khair","doi":"10.1111/hae.15133","DOIUrl":null,"url":null,"abstract":"<p>The shared decision-making (SDM) tool developed by the World Federation of Hemophilia (WFH) provides a clear and concise overview of the process by which people with haemophilia (PwH) can collaborate with their healthcare professionals (HCPs) to engage and arrive at a therapeutic decision. This tool will be useful for all people with all bleeding disorders, not just PwH.</p>","PeriodicalId":12819,"journal":{"name":"Haemophilia","volume":"31 1","pages":"5-6"},"PeriodicalIF":3.0000,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hae.15133","citationCount":"0","resultStr":"{\"title\":\"Giving Choice a Voice: Commentary on Development of the World Federation of Hemophilia Shared Decision-Making Tool\",\"authors\":\"Leonard A. Valentino, Kate Khair\",\"doi\":\"10.1111/hae.15133\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>The shared decision-making (SDM) tool developed by the World Federation of Hemophilia (WFH) provides a clear and concise overview of the process by which people with haemophilia (PwH) can collaborate with their healthcare professionals (HCPs) to engage and arrive at a therapeutic decision. This tool will be useful for all people with all bleeding disorders, not just PwH.</p>\",\"PeriodicalId\":12819,\"journal\":{\"name\":\"Haemophilia\",\"volume\":\"31 1\",\"pages\":\"5-6\"},\"PeriodicalIF\":3.0000,\"publicationDate\":\"2024-12-04\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hae.15133\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Haemophilia\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/hae.15133\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"HEMATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Haemophilia","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/hae.15133","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEMATOLOGY","Score":null,"Total":0}

引用次数: 0

摘要

由世界血友病联合会（WFH）开发的共同决策（SDM）工具提供了血友病患者（PwH）与其医疗保健专业人员（HCPs）合作参与并达成治疗决策的过程的清晰简明概述。这个工具将适用于所有出血性疾病患者，而不仅仅是PwH患者。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Giving Choice a Voice: Commentary on Development of the World Federation of Hemophilia Shared Decision-Making Tool

The shared decision-making (SDM) tool developed by the World Federation of Hemophilia (WFH) provides a clear and concise overview of the process by which people with haemophilia (PwH) can collaborate with their healthcare professionals (HCPs) to engage and arrive at a therapeutic decision. This tool will be useful for all people with all bleeding disorders, not just PwH.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Haemophilia 医学-血液学

CiteScore

6.50

自引率

28.20%

发文量

226

审稿时长

3-6 weeks

期刊介绍： Haemophilia is an international journal dedicated to the exchange of information regarding the comprehensive care of haemophilia. The Journal contains review articles, original scientific papers and case reports related to haemophilia care, with frequent supplements. Subjects covered include: clotting factor deficiencies, both inherited and acquired: haemophilia A, B, von Willebrand''s disease, deficiencies of factor V, VII, X and XI replacement therapy for clotting factor deficiencies component therapy in the developing world transfusion transmitted disease haemophilia care and paediatrics, orthopaedics, gynaecology and obstetrics nursing laboratory diagnosis carrier detection psycho-social concerns economic issues audit inherited platelet disorders.