以家庭为中心的产前护理:胎儿生命垂危:以发展理论为指导的方法。

IF 2.1 4区 医学 Q2 NURSING
Carrie J. Henry CNM, PhD, RN, Denise Côté-Arsenault PhD, RN, CPLC
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引用次数: 0

摘要

18 三体综合征(T18)是第二常见的常染色体三体综合征,包括多种畸形、生长受限和寿命严重缩短,通常只能持续数小时或数天。Côté-Arsenault 和 Denney-Koelsch 扩展了 Reva Rubin 的工作,描述了妊娠的社会心理阶段,从而描述了因 T18 等限制胎儿生命的疾病而改变的妊娠阶段和发育任务。当产前确诊 T18 时,妊娠会发生巨大的变化,尽管它仍然是一个社会心理发展过程。患有 T18 或其他限制胎儿生命的疾病时,妊娠的扩展阶段包括诊断前、了解诊断、与诊断共存、出生和死亡以及死亡后。在经历这些阶段时,父母还必须处理好孕期的 7 项发展任务,即(1)处理好人际关系;(2)理解病情的影响;(3)修正孕期目标;(4)充分利用与宝宝在一起的时间;(5)为出生和不可避免的死亡做准备;(6)为宝宝进行诚信宣传;(7)适应没有宝宝的生活。知识渊博的医疗服务提供者所能做的远不止帮助父母度过悲痛和促进有关分娩计划的讨论。本病例报告强调了知识渊博的医疗服务提供者的重要性,他们可以帮助父母了解怀孕的各个阶段和任务,使他们有能力做出符合自己价值观的选择,从而不留遗憾。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Family-Centered Antenatal Care With a Life-Limiting Fetal Condition: A Developmental Theory-Guided Approach

Trisomy 18 (T18) is the second-most common autosomal trisomy and includes multiple anomalies, growth restriction, and a severely shortened life span, often lasting only hours or days. Côté-Arsenault and Denney-Koelsch extended Reva Rubin's work, describing the psychosocial stages of pregnancy by describing the stages and developmental tasks for a pregnancy altered by a life-limiting fetal condition such as T18. When a diagnosis of T18 is made prenatally, the pregnancy changes dramatically, although it remains a psychosocial developmental process. The extended stages of pregnancy with T18 or another life-limiting fetal condition are: Pre-Diagnosis, Learning the Diagnosis, Living With the Diagnosis, Birth and Death, and Post Death. As they navigate these stages, parents must also address 7 developmental tasks of pregnancy, which are (1) Navigating Relationships, (2) Comprehending Implications of the Condition, (3) Revising Goals of Pregnancy, (4) Making the Most of Time With Baby, (5) Preparing for Birth and Inevitable Death, (6) Advocating for Baby With Integrity, and (7) Adjusting to Life in Absence of Baby. Knowledgeable health care providers can do much more than support parents through grief and facilitate discussions about birth planning. This case report highlights the importance of a knowledgeable provider who can help parents navigate the stages and tasks of pregnancy, empowering them to make choices consistent with their values so they have no regrets.

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来源期刊
CiteScore
3.60
自引率
7.40%
发文量
103
审稿时长
6-12 weeks
期刊介绍: The Journal of Midwifery & Women''s Health (JMWH) is a bimonthly, peer-reviewed journal dedicated to the publication of original research and review articles that focus on midwifery and women''s health. JMWH provides a forum for interdisciplinary exchange across a broad range of women''s health issues. Manuscripts that address midwifery, women''s health, education, evidence-based practice, public health, policy, and research are welcomed
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