家长对自闭症儿童的接受和理解(PAUACS)--工具开发研究。

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Jia Ying Sarah Lee, Koa Whittingham, Amy E Mitchell
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引用次数: 0

摘要

目前还没有专门用于评估家长对自闭症儿童的接受和理解程度的工具。我们的目的是开发一种家长报告量表--"家长接受和理解自闭症儿童量表"(PAUACS),并评估其信度和效度,以评估家长对自闭症儿童的接受和理解程度。共有 158 名自闭症儿童(平均年龄为 10.80 岁)的家长(74 名非自闭症患者,42 名自闭症患者,42 名质疑者;平均年龄为 42.69 岁)完成了在线调查,调查内容包括 PAUACS 原型以及家长敏感度、神经多样性肯定态度、自闭症特征、心理健康、儿童适应和家庭经历等方面的有效测量。其中一部分参与者(n = 97;61.4%)在两周后第二次填写了 PAUACS 问卷,以评估测试-再测可靠性。最终的 30 个项目量表显示出极佳的内部信度(α = 0.89)和重测信度(类内相关 = 0.92)。探索性因子分析显示,该量表结构清晰,包含四个不同的因子:理解因子 (α = 0.86)、先天因子 (α = 0.74)、接受因子 (α = 0.82) 和期望因子 (α = 0.73)。总体而言,PAUACS 具有良好的建构效度。收敛效度和发散效度均有初步证据。初步证据表明,PAUACS 是评估家长对自闭症儿童接受和理解程度的可靠有效工具。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parental Acceptance and Understanding of Autistic Children (PAUACS) - an Instrument Development Study.

Currently there are no instruments designed to assess parents' acceptance and understanding of their autistic child. We aimed to develop and evaluate the reliability and validity of a parent-report scale assessing parents' acceptance and understanding of their autistic child - the Parental Acceptance and Understanding of Autistic Children Scale (PAUACS). A total of 158 parents (74 non-autistic, 42 autistic, 42 questioning; mean age 42.69 years) of autistic children (mean age 10.80 years) completed an online survey comprising the prototype PAUACS as well as validated measures of parental sensitivity, neurodiversity affirming attitudes, autistic traits, mental health, and child adjustment and family experience. A subsample of participants (n = 97; 61.4%) completed the PAUACS questionnaire a second time, 2 weeks later, to assess for test-retest reliability. The final 30-item scale demonstrated excellent internal reliability (α = 0.89) and test-retest reliability (intraclass correlation = 0.92). Exploratory factor analysis revealed a clean structure comprising four distinct factors: Understanding (α = 0.86), Innate (α = 0.74), Acceptance (α = 0.82), and Expectations (α = 0.73). Overall, the PAUACS demonstrates good construct validity. Preliminary evidence of convergent validity and divergent validity was demonstrated. Preliminary evidence suggests PAUACS is a reliable and valid tool in assessing parents' acceptance and understanding of autistic children.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
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