从患者角度评估类风湿关节炎患者的临床疗效:文献叙事回顾

Juliana Gil Samper , Felipe García Durán , Wilson Bautista Molano
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引用次数: 0

摘要

目的确定并描述经西班牙文验证的用于评估类风湿关节炎患者在日常临床实践中的临床结果的工具,并从患者的角度进行评估,包括疾病活动、功能、疾病影响、治疗依从性和生活质量。材料与方法对各种数据库(PubMed、Scopus、Bireme、Scielo)中的文献进行了回顾,以寻找评估类风湿关节炎患者临床疗效的问卷,包括那些经过验证的西班牙语翻译,允许患者对疾病进行自我评估和临床监测的问卷。结论 评估类风湿性关节炎的问卷和量表有助于临床了解患者感知和报告的疾病演变情况,从而优化临床随访。在临床决策中使用这些工具可以提高对该病患者的护理质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Evaluation of clinical outcomes in patients with rheumatoid arthritis from the patient's perspective: a narrative review of the literature

Introduction

The evaluation of clinical outcomes in rheumatoid arthritis patients, including the patient's perspective, allows the inclusion of the patient's perspective in clinical decision-making using instruments designed for this purpose.

Objective

To identify and describe the instruments validated in Spanish to evaluate clinical outcomes in rheumatoid arthritis in daily clinical practice and from the patient's perspective, including disease activity, functionality, impact of the disease, adherence to treatment and quality of life.

Materials and methods

A review of the literature in various databases (PubMed, Scopus, Bireme, Scielo) was conducted looking for questionnaires that evaluate clinical outcomes in rheumatoid arthritis patients, including those with a validated Spanish translation that allow self-assessment of the disease by the patient and clinical monitoring.

Results

Fifteen questionnaires were identified and selected that met the inclusion criteria. Four instruments were found that evaluate quality of life, three that evaluate functionality, four that evaluate disease impact, one that evaluate disease activity, and three that evaluate adherence to treatment.

Conclusion

Questionnaires and scales that evaluate rheumatoid arthritis allow a clinical approach to the evolution of the disease as perceived and reported by the patients, optimizing clinical follow up. Implementation of these tools in clinical decision making allows for an improvement in quality of care of patient with this condition.
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