记录诊断对话，用于小儿白血病的交流研究。

IF 2.4 3区医学 Q2 HEMATOLOGY

Pediatric Blood & Cancer Pub Date : 2024-10-27 DOI:10.1002/pbc.31395

Petra Buursma, Sasja A. Schepers, Marijke C. Kars, Esther M. M. van den Bergh, Natasja Dors, Martha A. Grootenhuis, Peter M. Hoogerbrugge

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引用次数: 0

摘要

对病人与医生的互动进行录音是交流研究中推荐使用的一种方法。然而，人们对录制易受伤害患者的对话表示担忧。我们的研究考察了儿童、家长和肿瘤学家在记录儿科急性白血病诊断对话时的经验。结果表明，几乎所有的儿童和家长都对对话录音持欢迎态度。儿科肿瘤学家似乎高估了儿童和家长的预期情感负担，这可能会导致专业人士把关不严。这反过来又可能导致患者自主权的降低，以及在解决传播科学相关问题时研究质量的下降。

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Recording diagnostic conversations for communication research purposes in pediatric leukemia

Recordings of patient–doctor interactions is a recommended method in communication research. However, concerns are expressed regarding audio-recording of conversations with vulnerable patients. Our study examined experiences of children, parents, and oncologists with recording diagnostic conversations in the pediatric acute leukemia setting. Results show that recording conversations is generally well received by virtually all children and parents. Pediatric oncologists seem to overestimate the expected emotional burden for children and parents, which may lead to gatekeeping by professionals. This in turn may lead to a decrease in patient autonomy and research quality when addressing relevant questions in communication science.

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来源期刊

Pediatric Blood & Cancer 医学-小儿科

CiteScore

4.90

自引率

9.40%

发文量

546

审稿时长

1.5 months

期刊介绍： Pediatric Blood & Cancer publishes the highest quality manuscripts describing basic and clinical investigations of blood disorders and malignant diseases of childhood including diagnosis, treatment, epidemiology, etiology, biology, and molecular and clinical genetics of these diseases as they affect children, adolescents, and young adults. Pediatric Blood & Cancer will also include studies on such treatment options as hematopoietic stem cell transplantation, immunology, and gene therapy.