自我辩护人和家庭成员在辅助决策方面的经验。

IF 1.7 3区医学 Q2 EDUCATION, SPECIAL

Intellectual and Developmental Disabilities Pub Date : 2024-10-01 DOI:10.1352/1934-9556-62.5.392

Evan E Dean, Mayumi Hagiwara, Lashanna Brunson, Brad Linnenkamp, Sean Swindler, Karrie A Shogren

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引用次数: 0

摘要

辅助决策（SDM）是政策和实践中需要关注的一个重点，目的是增加残障人士行使自决权的机会，因为他们可以在得到支持的情况下对自己的生活做出决定。本研究采用内容分析法对由 27 名智力和发育障碍（IDD）成年人和 16 名家庭成员组成的五个焦点小组进行了分析，以了解 IDD 患者如何使用决策支持，以及家庭如何支持决策。智障人士和家庭成员描述了他们在决策过程中使用的一系列策略和支持，包括让可信赖的支持者参与、使用技术以及利用早期经验培养决策技能。这项研究的结果可以为实践和政策的制定提供参考，以加强 SDM 在研究、政策和实践中的应用。

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Self-Advocate and Family Member Experiences With Supported Decision Making.

Supported decision making (SDM) is a needed focus of policy and practice to enhance opportunities for people with disabilities to exercise self-determination as they are supported to make decisions about their life. This study used content analysis to analyze five focus groups comprised of 27 adults with intellectual and developmental disabilities (IDD) and 16 family members to understand how people with IDD use supports for decision making and how families support decision making. People with IDD and family members described a range of strategies and supports they used for decision making, including engaging trusted supporters, accessing technology, and using early experiences to build decision-making skills. Findings from this research can inform development of practices and policy to enhance use of SDM in research, policy, and practice.

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来源期刊

Intellectual and Developmental Disabilities Multiple-

CiteScore

2.60

自引率

11.10%

发文量

期刊介绍： Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.