炎症性关节炎患者报告电子患者报告结果的真实体验及影响参与的因素:范围界定综述。

IF 3.2 3区 医学 Q2 RHEUMATOLOGY
Rheumatology International Pub Date : 2024-12-01 Epub Date: 2024-09-23 DOI:10.1007/s00296-024-05716-z
Zixin Xu, Tianyi Han, Lin Cheng, Jiaxin Fan, Yujie Jiang, Sang Yan
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引用次数: 0

摘要

炎症性关节炎会导致疼痛、僵硬、疲劳,并降低生活质量。炎症性关节炎患者必须经常监测疾病活动,而电子患者报告结果(ePRO)在这一过程中发挥着至关重要的作用。本研究旨在调查炎症性关节炎患者报告 ePRO 的真实体验,并找出影响参与的因素。最终目的是为有针对性的策略提供信息,并制定干预措施,以提高电子病历在临床环境中的利用率。我们使用 PubMed、Web of science、Embase 和 Cochrane 图书馆对 2000 年至今的文献进行了范围界定,文献搜索的重点是炎症性关节炎患者报告 ePRO 的经验以及影响参与的因素。根据纳入和排除标准筛选文章。共确定了 1478 项研究,其中 26 项被纳入综述。患者对应用程序/平台的首要体验是易于使用,应用程序清晰、合理、直观。总结发现了 18 个潜在影响因素,其中 5 个因素的证据不一致。报告电子PRO的参与受多种因素的影响,而对于炎症性关节炎患者来说,体验是一个至关重要的方面。分析患者的体验和影响因素为今后采取干预措施促进电子病历的临床应用提供了理论依据。然而,要充分了解影响因素与干预结果之间的关联,还需要进一步的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The real experience of reporting electronic patient-reported outcomes in patients with inflammatory arthritis and factors influencing participation: a scoping review.

Inflammatory arthritis can result in pain, stiffness, fatigue, and reduce quality of life. Frequent monitoring of disease activity is necessary for patients with inflammatory arthritis, and electronic patient-reported outcomes (ePROs) play a crucial role in this process. This study aimed to investigate the real experience of reporting ePROs in patients with inflammatory arthritis, as well as to identify factors influencing participation. The ultimate goal was to inform targeted strategies and develop interventions to enhance the utilization of ePROs in clinical settings. A scoping review was performed using PubMed, Web of science, Embase, and the Cochrane library from 2000 to the present and the literature search focused on the experience of reporting ePROs in inflammatory arthritis and the factors that influence participation. Screening articles based on inclusion and exclusion criteria. A total of 1478 studies were identified, out of which 26 were included in the review. The top experience of applications/platforms in patients was that they were easy to use and that the applications were clear, logical and intuitive. A summary of 18 potential influencing factors were identified and there was inconsistent evidence for five of these factors. The participation of reporting ePROs is influenced by various factors, and the experience is a crucial aspect in patients with inflammatory arthritis. Analyzing patients' experience and influencing factors provides a theoretical basis for future interventions to facilitate the clinical application of ePRO. However, further research is needed to fully understand the association between influencing factors and intervention outcomes.

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来源期刊
Rheumatology International
Rheumatology International 医学-风湿病学
CiteScore
7.30
自引率
5.00%
发文量
191
审稿时长
16. months
期刊介绍: RHEUMATOLOGY INTERNATIONAL is an independent journal reflecting world-wide progress in the research, diagnosis and treatment of the various rheumatic diseases. It is designed to serve researchers and clinicians in the field of rheumatology. RHEUMATOLOGY INTERNATIONAL will cover all modern trends in clinical research as well as in the management of rheumatic diseases. Special emphasis will be given to public health issues related to rheumatic diseases, applying rheumatology research to clinical practice, epidemiology of rheumatic diseases, diagnostic tests for rheumatic diseases, patient reported outcomes (PROs) in rheumatology and evidence on education of rheumatology. Contributions to these topics will appear in the form of original publications, short communications, editorials, and reviews. "Letters to the editor" will be welcome as an enhancement to discussion. Basic science research, including in vitro or animal studies, is discouraged to submit, as we will only review studies on humans with an epidemological or clinical perspective. Case reports without a proper review of the literatura (Case-based Reviews) will not be published. Every effort will be made to ensure speed of publication while maintaining a high standard of contents and production. Manuscripts submitted for publication must contain a statement to the effect that all human studies have been reviewed by the appropriate ethics committee and have therefore been performed in accordance with the ethical standards laid down in an appropriate version of the 1964 Declaration of Helsinki. It should also be stated clearly in the text that all persons gave their informed consent prior to their inclusion in the study. Details that might disclose the identity of the subjects under study should be omitted.
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