结合孩子、母亲和他们所处的环境,提出有关胎儿酒精中毒谱系障碍的难题。

IF 19.9 1区 医学 Q1 PEDIATRICS
Sabrina H Y Eliason MD , Anton R Miller MD , W Ben Gibbard MD , Gurpreet Salh MD , Nancy Lanphear MD
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引用次数: 0

摘要

酒精是一种已知的致畸剂,产前接触酒精仍然是一个重大的公共卫生问题。胎儿酒精谱系障碍已成为描述受产前酒精暴露影响的个体的诊断方法。在本 "观点 "中,我们对胎儿酒精谱系障碍作为诊断术语的持续使用提出了极大的担忧,因为它延续了对儿童发育和孕产妇健康的误导和过时的说法。我们认为,胎儿酒精谱系障碍这一术语助长了种族主义文化,并歧视了许多被诊断出患有该疾病的人。胎儿酒精中毒谱系障碍这一术语未能反映我们通过遗传学领域的进步以及对创伤和逆境影响的理解,在对神经发育的集体认识方面所取得的进展。我们呼吁采取紧急国际合作行动,审查将其作为诊断术语的使用情况,并从更广泛的角度重新考虑将残疾诊断为医学疾病的做法。我们认为,这种做法没有认识到,个人功能和参与的结果不仅是健康状况的结果,也是个人在其生活的家庭和社会中复杂互动和经历的产物。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Asking difficult questions about fetal alcohol spectrum disorder in the context of the child, the mother, and the systems in which they live
Alcohol is a known teratogen and prenatal alcohol exposure remains a major ongoing public health concern. Fetal alcohol spectrum disorder has become the diagnosis for describing individuals who have been affected by prenatal alcohol exposure. In this Viewpoint, we raise major concerns about its continued use as a diagnostic term in how it perpetuates a misleading and outdated narrative about child development and maternal health. We argue that the term fetal alcohol spectrum disorder has contributed to a culture of racism and discrimination for many who are diagnosed with it. The term fetal alcohol spectrum disorder fails to capture the progress made in our collective understanding of neurodevelopment through advancements in the field of genetics and in understanding the effects of trauma and adversity. We call for urgent international collaborative action to review the use of it as a diagnostic term and, more broadly, to reconsider the practice of diagnosing disabilities as medical illnesses. We suggest that this practice fails to recognise that outcomes of functioning and participation in individuals are not only the results of health conditions, but are also the products of complex interactions and experiences of individuals within the families and societies in which they live.
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来源期刊
Lancet Child & Adolescent Health
Lancet Child & Adolescent Health Psychology-Developmental and Educational Psychology
CiteScore
40.90
自引率
0.80%
发文量
381
期刊介绍: The Lancet Child & Adolescent Health, an independent journal with a global perspective and strong clinical focus, presents influential original research, authoritative reviews, and insightful opinion pieces to promote the health of children from fetal development through young adulthood. This journal invite submissions that will directly impact clinical practice or child health across the disciplines of general paediatrics, adolescent medicine, or child development, and across all paediatric subspecialties including (but not limited to) allergy and immunology, cardiology, critical care, endocrinology, fetal and neonatal medicine, gastroenterology, haematology, hepatology and nutrition, infectious diseases, neurology, oncology, psychiatry, respiratory medicine, and surgery. Content includes articles, reviews, viewpoints, clinical pictures, comments, and correspondence, along with series and commissions aimed at driving positive change in clinical practice and health policy in child and adolescent health.
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