探讨 2020 年代囊性纤维化（CF）和社会心理健康的复杂性：当前和未来的挑战

IF 5.4 3区材料科学 Q2 CHEMISTRY, PHYSICAL

ACS Applied Energy Materials Pub Date : 2024-08-16 DOI:10.1016/j.prrv.2024.08.001

Rebecca Dobra, Sarah Carroll, Jane C. Davies, Fiona Dowdall, Alistair Duff, Anna Elderton, Anna M. Georgiopoulos, Rachel Massey-Chase, Paul McNally, Michèle Puckey, Susan Madge

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引用次数: 0

摘要

囊性纤维化（CF）历来与严重的进行性多系统病变、繁重的治疗负担、复杂的社会心理挑战和预期寿命缩短有关。最显著的变化来自囊性纤维化跨膜受体（CFTR）调节剂，它为有资格和有能力使用这些药物的患者带来了巨大的益处。然而，在取得这些令人振奋的进展的同时，或者说正因为取得了这些进展，过去几年也给 CF 患者的社会心理健康带来了新的重大挑战。

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Exploring the complexity of cystic fibrosis (CF) and psychosocial wellbeing in the 2020s: Current and future challenges

Cystic fibrosis (CF) is traditionally associated with considerable and progressive multisystem pathology, onerous treatment burden, complex psychosocial challenges, and reduced life-expectancy .This decade has seen transformative change in management for many, but not all, people with CF. The most notable change comes from Cystic Fibrosis Transmembrane Receptor (CFTR) modulators, which bring significant benefits for people who are eligible for, and able to access, them . However alongside, or perhaps because of, this exciting progress, the past few years have also brought important novel challenges to the psychosocial wellbeing of people with CF.

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来源期刊

ACS Applied Energy Materials Materials Science-Materials Chemistry

CiteScore

10.30

自引率

6.20%

发文量

1368

期刊介绍： ACS Applied Energy Materials is an interdisciplinary journal publishing original research covering all aspects of materials, engineering, chemistry, physics and biology relevant to energy conversion and storage. The journal is devoted to reports of new and original experimental and theoretical research of an applied nature that integrate knowledge in the areas of materials, engineering, physics, bioscience, and chemistry into important energy applications.