护理数据化:糖尿病患者健康技术的安全与隐私问题

IF 1.7 Q2 SOCIOLOGY
Societies Pub Date : 2024-08-29 DOI:10.3390/soc14090163
Alessia Bertolazzi, Katarzyna Marzęda-Młynarska, Justyna Kięczkowska, Maria Letizia Zanier
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引用次数: 0

摘要

通过数据化、数据主义和数据监控的概念框架,本研究调查了 1 型糖尿病患者对数据化的信念和态度以及相关的隐私和安全问题。通过对波兰和意大利的 52 名 1 型糖尿病患者进行访谈,开展了定性研究。研究结果揭示了自律与授权之间的动态相互作用。大多数受访者强调了技术对于更好地了解自身健康状况和更有效地管理疾病的益处。然而,少数受访者认为数据化带来了负面影响,包括导致对疾病过度控制的数据监控,以及以过度依赖技术为特征的数据主义。对技术的批判性信念助长了排斥态度,导致一些受访者暂停或放弃使用技术。最后,受访者对隐私和安全问题的反思能力似乎较低,尤其是在教育水平和社会经济地位较低的老年人中。这导致受访者对与安全和隐私相关的潜在风险缺乏了解和估计不足。研究结果加深了人们对促进或阻碍糖尿病患者采用技术的因素的了解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Datafication of Care: Security and Privacy Issues with Health Technology for People with Diabetes
Through the conceptual framework of datafication, dataism and dataveillance, this study investigates beliefs and attitudes regarding datafication and the related privacy and security concerns among individuals with Type 1 diabetes. Qualitative research was conducted through interviews among fifty-two individuals with Type 1 diabetes in Poland and Italy. The findings reveal a dynamic interplay between self-discipline and empowerment. The majority of interviewees emphasized the benefits of technologies for gaining a better understanding of their health condition and for more effective disease management. However, a minority of interviewees perceived the negative effects of datafication, including dataveillance, which leads to hyper-control of the disease, and dataism, characterized by excessive reliance on and dependency on technology. Critical beliefs about technologies fuelled rejection attitudes, leading some interviewees to suspend or abandon their use. Lastly, reflexivity on privacy and security issues appears to be low, particularly among older individuals with lower levels of education and socioeconomic status. This results in a poor understanding and underestimation of the potential risks associated with security and privacy. The findings increase the understanding of the factors that can facilitate or hinder the adoption of technology among people with diabetes.
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来源期刊
Societies
Societies SOCIOLOGY-
CiteScore
3.10
自引率
9.50%
发文量
150
审稿时长
11 weeks
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