姑息治疗保护外衣上的漏洞:马蒂厄-西蒙内(Mathieu Simonet)的《母性》(La maternité)和爱德华多-贝尔蒂(Eduardo Berti)的《理想的存在》(An Ideal Presence)。

IF 0.2 4区 文学 0 LITERATURE
Julia Pröll
{"title":"姑息治疗保护外衣上的漏洞:马蒂厄-西蒙内(Mathieu Simonet)的《母性》(La maternité)和爱德华多-贝尔蒂(Eduardo Berti)的《理想的存在》(An Ideal Presence)。","authors":"Julia Pröll","doi":"10.1353/lm.2024.a935837","DOIUrl":null,"url":null,"abstract":"<p><p>In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight \"holes\" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"137-156"},"PeriodicalIF":0.2000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Holes in the Protective Cloak of Palliative Care: Mathieu Simonet's <i>La maternité</i> and Eduardo Berti's <i>An Ideal Presence</i>.\",\"authors\":\"Julia Pröll\",\"doi\":\"10.1353/lm.2024.a935837\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight \\\"holes\\\" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.</p>\",\"PeriodicalId\":44538,\"journal\":{\"name\":\"LITERATURE AND MEDICINE\",\"volume\":\"42 1\",\"pages\":\"137-156\"},\"PeriodicalIF\":0.2000,\"publicationDate\":\"2024-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"LITERATURE AND MEDICINE\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1353/lm.2024.a935837\",\"RegionNum\":4,\"RegionCategory\":\"文学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"0\",\"JCRName\":\"LITERATURE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"LITERATURE AND MEDICINE","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1353/lm.2024.a935837","RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"0","JCRName":"LITERATURE","Score":null,"Total":0}
引用次数: 0

摘要

在爱德华多-贝尔蒂(Eduardo Berti)的长篇小说《理想的存在》(2020 年)和马蒂厄-西蒙内(Mathieu Simonet)的长篇小说《母性》(2012 年)中,临终者的亲属和姑息治疗专业人员都有发言权。他们的经历凸显了姑息治疗外衣上的 "漏洞",因为姑息治疗永远无法完全保护临终病人。然而,他们也提出了为照护者本身提供姑息治疗的问题。这种保护需求在两部小说中都得到了表达,即在对临终病人的关怀和远离其痛苦的自我关怀之间找到适当的分寸,这有可能与临终关怀运动所采用的低技术、高接触的方法相冲突。通过揭示姑息关怀的局限性,这些(自)虚构的描述可能会防止人们对这一重要医疗领域抱有过高的期望。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Holes in the Protective Cloak of Palliative Care: Mathieu Simonet's La maternité and Eduardo Berti's An Ideal Presence.

In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight "holes" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
0.40
自引率
0.00%
发文量
20
期刊介绍: Literature and Medicine is a journal devoted to exploring interfaces between literary and medical knowledge and understanding. Issues of illness, health, medical science, violence, and the body are examined through literary and cultural texts. Our readership includes scholars of literature, history, and critical theory, as well as health professionals.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信