Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo
{"title":"\"我再也不能和妈妈一起玩了\":癌症儿童 8-12 岁兄弟姐妹的经历:定性研究。","authors":"Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo","doi":"10.1177/27527530241267324","DOIUrl":null,"url":null,"abstract":"<p><p><b>Background:</b> Siblings of children with cancer have been shown to experience disruption in multiple domains including family, school, and friendships. Existing literature on siblings' experiences focuses on older children or on a broad range of ages. <b>Aim:</b> To explore the experience of siblings aged 8-12 years when their brother or sister is diagnosed with cancer. <b>Method:</b> A qualitative design incorporating phenomenology as the theoretical framework was used. Participants were recruited from across Australia via notices on social media sites and by the distribution of flyers. We used thematic analysis to analyze the data. Data were collected via semistructured interviews conducted either in person or online. <b>Findings:</b> A total of 13 siblings (7 boys and 6 girls) aged between 8 and 12 years (<i>M</i> = 9.8, <i>SD</i> = 1.6) were interviewed. Seven main themes were identified. These were \"It was really hard\": Reactions to the cancer diagnosis; \"I'm really angry\": Emotional and Physical Responses to siblings' treatment; \"I pretend teddy is real\": Play as an outlet; \"It was very lonely\": Missing their siblings; \"I missed out on a lot of fun\": Disruption of activities: School, sports, playdates, and parties; Change and Transition and \"Making a difficult situation worse\": COVID-19 Pandemic. <b>Discussion:</b> Findings extend the current understanding showing that younger siblings' developmental and cognitive skills impact their experiences of childhood cancer. Younger siblings outlined the many losses they experienced which demonstrated a need for a comprehensive and tailored program to support young siblings aged under 12 of children with cancer.</p>","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":null,"pages":null},"PeriodicalIF":1.0000,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"I Don't Get to Play With My Mum Anymore\\\": Experiences of Siblings Aged 8-12 of Children With Cancer: A Qualitative Study.\",\"authors\":\"Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo\",\"doi\":\"10.1177/27527530241267324\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p><b>Background:</b> Siblings of children with cancer have been shown to experience disruption in multiple domains including family, school, and friendships. Existing literature on siblings' experiences focuses on older children or on a broad range of ages. <b>Aim:</b> To explore the experience of siblings aged 8-12 years when their brother or sister is diagnosed with cancer. <b>Method:</b> A qualitative design incorporating phenomenology as the theoretical framework was used. Participants were recruited from across Australia via notices on social media sites and by the distribution of flyers. We used thematic analysis to analyze the data. Data were collected via semistructured interviews conducted either in person or online. <b>Findings:</b> A total of 13 siblings (7 boys and 6 girls) aged between 8 and 12 years (<i>M</i> = 9.8, <i>SD</i> = 1.6) were interviewed. Seven main themes were identified. These were \\\"It was really hard\\\": Reactions to the cancer diagnosis; \\\"I'm really angry\\\": Emotional and Physical Responses to siblings' treatment; \\\"I pretend teddy is real\\\": Play as an outlet; \\\"It was very lonely\\\": Missing their siblings; \\\"I missed out on a lot of fun\\\": Disruption of activities: School, sports, playdates, and parties; Change and Transition and \\\"Making a difficult situation worse\\\": COVID-19 Pandemic. <b>Discussion:</b> Findings extend the current understanding showing that younger siblings' developmental and cognitive skills impact their experiences of childhood cancer. Younger siblings outlined the many losses they experienced which demonstrated a need for a comprehensive and tailored program to support young siblings aged under 12 of children with cancer.</p>\",\"PeriodicalId\":29692,\"journal\":{\"name\":\"Journal of Pediatric Hematology-Oncology Nursing\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.0000,\"publicationDate\":\"2024-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Hematology-Oncology Nursing\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1177/27527530241267324\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/8/11 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Hematology-Oncology Nursing","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/27527530241267324","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/8/11 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}
"I Don't Get to Play With My Mum Anymore": Experiences of Siblings Aged 8-12 of Children With Cancer: A Qualitative Study.
Background: Siblings of children with cancer have been shown to experience disruption in multiple domains including family, school, and friendships. Existing literature on siblings' experiences focuses on older children or on a broad range of ages. Aim: To explore the experience of siblings aged 8-12 years when their brother or sister is diagnosed with cancer. Method: A qualitative design incorporating phenomenology as the theoretical framework was used. Participants were recruited from across Australia via notices on social media sites and by the distribution of flyers. We used thematic analysis to analyze the data. Data were collected via semistructured interviews conducted either in person or online. Findings: A total of 13 siblings (7 boys and 6 girls) aged between 8 and 12 years (M = 9.8, SD = 1.6) were interviewed. Seven main themes were identified. These were "It was really hard": Reactions to the cancer diagnosis; "I'm really angry": Emotional and Physical Responses to siblings' treatment; "I pretend teddy is real": Play as an outlet; "It was very lonely": Missing their siblings; "I missed out on a lot of fun": Disruption of activities: School, sports, playdates, and parties; Change and Transition and "Making a difficult situation worse": COVID-19 Pandemic. Discussion: Findings extend the current understanding showing that younger siblings' developmental and cognitive skills impact their experiences of childhood cancer. Younger siblings outlined the many losses they experienced which demonstrated a need for a comprehensive and tailored program to support young siblings aged under 12 of children with cancer.