特发性炎症性肌病的数字健康与自我管理:错失良机?

IF 5.7 2区 医学 Q1 RHEUMATOLOGY
Current Rheumatology Reports Pub Date : 2024-11-01 Epub Date: 2024-08-08 DOI:10.1007/s11926-024-01157-6
Simone Battista, Benedetto Giardulli, Cristiana Sieiro Santos, Or Aharonov, Darshan Puttaswamy, Anne -Marie Russell, Latika Gupta
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引用次数: 0

摘要

综述目的:本文探讨了数字医疗在特发性炎症性肌病(IIMs)中的潜力,重点关注自我管理。数字自我管理技术包括量身定制的治疗计划、症状跟踪、教育资源、增强沟通以及对长期规划的支持:在论证了数字健康在 IIMs 管理(从诊断到治疗)中的重要性之后,我们的文献综述发现,在针对 IIMs 患者的数字自我管理干预措施的有效性研究方面存在明显差距,没有随机对照试验或观察性研究涉及这一主题。我们的综述进一步强调了针对 IIMs 患者的自我管理干预研究的巨大需求尚未得到满足。这些研究的缺失突出表明,有必要共同努力弥补这一空白,并利用数字技术开发个性化的、有效的 IIMs 管理策略。IIMs患者应该获得与其他风湿病和肌肉骨骼疾病患者类似的量身定制的自我管理方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?

Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity?

Purpose of review: This paper explored the potential of digital health in idiopathic inflammatory myopathies (IIMs), with a focus on self-management. Digital self-management technology includes tailored treatment plans, symptom tracking, educational resources, enhanced communication, and support for long-term planning.

Recent findings: After arguing the importance of digital health in IIMs management, from diagnosis until treatment, our literature review revealed a notable gap in research focusing on the efficacy of digital self-management interventions for individuals with IIMs, with no randomised controlled trials or observational studies addressing this topic. Our review further highlighted the significant unmet need for research in self-management interventions for individuals with IIMs. The absence of studies underscores the necessity for collaborative efforts to address this gap and develop personalised, effective strategies for managing IIMs using digital technology. Individuals with IIMs deserve tailored self-management approaches akin to those available for other rheumatic and musculoskeletal diseases.

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来源期刊
CiteScore
11.20
自引率
0.00%
发文量
41
期刊介绍: This journal aims to review the most important, recently published research in the field of rheumatology. By providing clear, insightful, balanced contributions by international experts, the journal intends to serve all those involved in the care and prevention of rheumatologic conditions. We accomplish this aim by appointing international authorities to serve as Section Editors in key subject areas such as the many forms of arthritis, osteoporosis and metabolic bone disease, and systemic lupus erythematosus. Section Editors, in turn, select topics for which leading experts contribute comprehensive review articles that emphasize new developments and recently published papers of major importance, highlighted by annotated reference lists. An international Editorial Board reviews the annual table of contents, suggests articles of special interest to their country/region, and ensures that topics are current and include emerging research. Commentaries from well-known figures in the field are also occasionally provided.
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