多发性硬化症患者对辅助技术的看法和使用情况:范围界定综述。

IF 1.9 4区 医学 Q2 REHABILITATION
Alexandra N Jackson, Rebekah Sandhu, Marcia Finlayson
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引用次数: 0

摘要

辅助技术(AT)为多发性硬化症患者(PwMS)提供了参与日常活动的能力,但获取辅助技术可能具有挑战性。了解有关多发性硬化症患者对辅助器具的看法和使用情况的知识现状,有助于对辅助器具的获取过程进行批判性思考。本次范围界定研究的目的是了解有关残障人士使用辅助器具的情况,找出知识空白,为今后的研究和辅助器具匹配实践提供指导。我们检索了四个数据库(Medline、CINAHL、PsychNet 和 Engineering Village),对有关残疾人使用辅助器具的观点和情况的定性研究进行了范围界定。所纳入的论文侧重于非机构环境,涉及参与者的感受/认知/体验,且为英文。初始检索时间为 2021 年 10 月,更新时间为 2022 年和 2023 年。两名审稿人负责筛选、审阅和提取,第三名审稿人负责解决分歧。数据提取以 "加拿大职业表现与参与模型 "为指导,按照生产、自我保健和/或休闲职业对智能辅助工具的使用进行分类。Covidence® 用于数据提取。研究结果被导出到电子表格中,以便进行专题分析。搜索共发现 22 份同行评审期刊和 11 份消费者出版物(n = 33)。最常见的辅助器具是移动设备。主要用途是自我护理和休闲。常见用途包括功能性移动、交通、个人护理、家务管理、娱乐和社交。对辅助器具的看法主要集中在辅助器具需求、适应辅助器具、影响因素、性能和参与度的提高以及寻求获取建议等方面。缺乏对除助行设备以外的辅助器具的使用经验和参与日常活动的研究。这些证据为未来的方向和影响提供了一些启示,以支持残疾人获得辅助器具。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perspectives on and use of assistive technology by persons with MS: a scoping review.

Assistive technology (AT) provides persons with Multiple Sclerosis (PwMS) ability to engage in daily activities, however acquiring AT can be challenging. Understanding current state of knowledge about perspectives and use of AT by PwMS may support critical thinking about AT acquisition process. The aim of this scoping review was to map what is known about AT use by PwMS, to identify gaps in knowledge to guide future research and practice for AT matching. A scoping review of qualitative research on perspectives and use of AT by PwMS searched four databases (Medline, CINAHL, PsychNet, and Engineering Village). Papers included focused on non-institutional settings, addressed participant's feelings/perceptions/experiences, and were in English. Initial search October 2021, updated 2022 and 2023. Two reviewers conducted screening, review, and extraction, with a third resolving disagreements. Data extraction guided by the Canadian Model of Occupational Performance and Engagement, categorised AT use by productivity, self-care, and/or leisure occupations. Covidence® was used for extraction. Findings were exported into a spreadsheet to facilitate thematic analysis. Search identified 22 peer-reviewed journals and 11 consumer publications (n = 33). Most common AT was mobility devices. Primary purposes were self-care and leisure. Common use included functional mobility, transportation, personal care, household management, recreation, and socialisation. Perceptions focused on AT need, adjusting to AT, influencing factors, performance and engagement improvements, and seeking acquisition advice. Lack of research on experiences and use of AT beyond mobility equipment, and for engagement of daily activities. Evidence provides some insights for future directions and implications to support AT acquisition for PwMS.

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来源期刊
CiteScore
5.70
自引率
13.60%
发文量
128
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