患有影响外观的疾病和受伤的儿童和青少年的父母和照护者心理社会困扰的交叉条件风险和保护因素

IF 5.2 1区 心理学 Q1 PSYCHIATRY
Maia Thornton , Diana Harcourt , Toity Deave , James Kiff , Paul White , Heidi Williamson
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引用次数: 0

摘要

除了典型的养育挑战外,针对具体情况的初步研究表明,具有不同明显差异的儿童的父母可能会遇到类似的社会心理困难,并需要不同的支持。尽管如此,目前还缺乏大规模的跨病症研究,以确定导致父母痛苦和社会心理适应的风险和保护因素。29 名有各种明显差异儿童的家长和照护者完成了一项在线调查,调查内容包括标准化结果测量、特定研究测量和开放式问题。多元回归模型确定了可能的风险和保护因素,并使用内容分析法对通过开放式问题收集的数据进行了分析。研究结果支持之前对有明显差异儿童的家长进行的小规模跨条件定性研究中确定的主题。造成家长负面情绪和压力的风险因素包括家长对其子女明显差异的可注意性和取笑的报告。保护因素包括良好的亲子沟通、自我同情、对孩子病情的了解以及对治疗的满意度。所发现的风险因素和保护因素为了解这一家长群体的经历提供了重要依据,并指出了可能的社会心理干预途径。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries

Alongside typical parenting challenges, initial condition-specific research suggests thadifferent experiences and support needs.t parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to identify risk and protective factors for parental distress and psychosocial adjustment has been lacking. Two hundred and nine parents and carers of children with a range of visible differences completed an online survey comprised of standardised outcome measures, study-specific measures, and open-ended questions. Multiple regression modelling identified possible risk and protective factors, and data collected via open-ended questions were analysed using content analysis. Findings support themes previously identified in small-scale cross-condition qualitative research with parents of children with visible differences. Risk factors for parental negative affect and stress included parental reports of the noticeability of their child’s visible difference and teasing. Protective factors included good parent-child communication, self-compassion, knowledge of their child’s condition and satisfaction with treatment. The risk and protective factors identified provide important insight into the experiences of this parent population and indicate possible avenues for psychosocial intervention.

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来源期刊
Body Image
Body Image Multiple-
CiteScore
8.70
自引率
28.80%
发文量
174
期刊介绍: Body Image is an international, peer-reviewed journal that publishes high-quality, scientific articles on body image and human physical appearance. Body Image is a multi-faceted concept that refers to persons perceptions and attitudes about their own body, particularly but not exclusively its appearance. The journal invites contributions from a broad range of disciplines-psychological science, other social and behavioral sciences, and medical and health sciences. The journal publishes original research articles, brief research reports, theoretical and review papers, and science-based practitioner reports of interest. Dissertation abstracts are also published online, and the journal gives an annual award for the best doctoral dissertation in this field.
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