痴呆症患者的尊严:概念分析。

IF 2.9 1区 哲学 Q1 ETHICS
Nursing Ethics Pub Date : 2024-11-01 Epub Date: 2024-06-21 DOI:10.1177/09697330241262469
Yuchen Zhang, Jennifer H Lingler, Catherine M Bender, Jennifer B Seaman
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引用次数: 0

摘要

背景:尊严是一个抽象而复杂的概念,是人性的重要组成部分,也是医疗保健的基本指导原则。以往的文献表明,痴呆症患者(PwD)的尊严会受到损害,但这些患者在适当的外部支持下仍能保持有尊严地生活。阿尔茨海默病和相关痴呆症(ADRDs)会导致患者功能逐渐衰退,脆弱性和依赖性增加,从而增加了患者接受不适当或不充分护理的风险,从而损害尊严。考虑到疾病患病率的增加和痴呆症护理成本的不断攀升,制定一个以价值为基础的有效指南可以避免痛苦、最大限度地维护尊严,从而提高生活质量(QoL)。研究设计:我们采用 Walker 和 Avant 的八步流程进行了概念分析。以 "尊严"、"痴呆症"、"阿尔茨海默病 "和 "痴呆症护理 "为关键词进行了全面的文献检索(PubMed 和 CINAHL):共收录了 4910 篇出版物中的 42 篇。残疾人尊严的概念可操作为提升价值和尊重,允许一个人存在和表达自我意识,无论其身体、精神或认知健康状况如何。这一概念有两个子维度:包括固有自我的绝对尊严和以动态反思性为特征的相对尊严。值得和尊重是尊严的两个主要属性,而自主则是尊严的一个基本组成部分。残疾人尊严的具体先决条件是赋权、非恶意和适应性环境支架。结论:作为一种基本和必要的人文价值观,在痴呆症护理中融入尊严可带来高效和有效的护理,从而在整个疾病发展过程中优化残疾人的 QoL。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Dignity in people with dementia: A concept analysis.

Background: Dignity, an abstract and complex concept, is an essential part of humanity and an underlying guiding principle in healthcare. Previous literature indicates dignity is compromised in people with dementia (PwD), but those PwD maintain the capacity to live with dignity with appropriate external support. Alzheimer's disease and related dementias (ADRDs) lead to progressive functional decline and increased vulnerability and dependence, leading to heightened risks of PwD receiving inappropriate or insufficient care that diminishes dignity. Considering the increased disease prevalence and the continuously escalating costs of dementia care, establishing a productive value-based guideline may prevent suffering, maximize dignity, and thus promote quality of life (QoL).Aim: The goal of this project is to identify actionable targets for integrating dignity harmoniously and practically into care planning and management for PwD.Research Design: We conducted a concept analysis using Walker and Avant's eight-step process. A comprehensive literature search was conducted (PubMed and CINAHL) with the keywords "dignity," "dementia," "Alzheimer's disease," and "dementia care."Results: A total of 42 out of 4910 publications were included. The concept of dignity in PwD is operationalized as the promotion of worthiness and the accordance of respect that allows the presence and expression of a person's sense of self, regardless of physical, mental, or cognitive health. The concept has two subdimensions: absolute dignity which encompasses the inherent self and relative dignity characterized by its dynamic reflective nature. Worthiness and respect are the two main attributes, while autonomy is an underlying component of dignity. Specific antecedents of dignity in PwD are empowerment, non-maleficence, and adaptive environmental scaffolding. As a consequence of facilitating dignity in PwD, QoL may be enhanced.Conclusion: As a foundational and necessary humanistic value, incorporating dignity into dementia care can lead to efficient and effective care that optimizes QoL in PwD throughout their disease progression.

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来源期刊
Nursing Ethics
Nursing Ethics 医学-护理
CiteScore
7.80
自引率
11.90%
发文量
117
审稿时长
6-12 weeks
期刊介绍: Nursing Ethics takes a practical approach to this complex subject and relates each topic to the working environment. The articles on ethical and legal issues are written in a comprehensible style and official documents are analysed in a user-friendly way. The international Editorial Board ensures the selection of a wide range of high quality articles of global significance.
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