从原理到实践:研究人员与社区合作伙伴和有亲身经历的患者共同领导参与式研究以降低孕产妇败血症死亡率和发病率的指南》。

IF 1.8 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Maternal and Child Health Journal Pub Date : 2024-08-01 Epub Date: 2024-06-18 DOI:10.1007/s10995-024-03954-y
Kendra L Smith, Elliott Main, Melissa E Bauer
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引用次数: 0

摘要

目标:孕产妇死亡率和发病率对种族化人群中的分娩者造成了极大的影响。遗憾的是,研究人员在研究中除了扮演研究对象的角色外,往往缺乏真正的社区参与,从而使这些不良后果更加严重,导致改善护理和提高公平性的策略效果不佳。本文详细介绍了利用共同领导和共同创造的社区参与原则,制定分阶段联邦资助的社区参与研究项目的现实策略。文章还包括研究人员和顾问委员会对公平吸引患者和社区合作伙伴参与研究的可行做法和经验教训的反思:本文详细介绍了社区参与式研究原则在联邦政府资助的分阶段研究项目中的应用,该项目侧重于了解孕产妇败血症的差异,以制定更好的临床和社区干预措施。具体而言,文章讨论了研究合作的早期步骤,即在透明、尊重、补偿和提高研究公正性等原则的指导下,与社区领导委员会建立可持续的合作关系:结果:根据作者的经验,为资助者、研究人员和机构提供了建议,以提高社区参与式研究的质量和成果。这项工作为基于社区的参与式研究和社区参与式研究文献增添了新的内容,提供了与各种合作者公平参与研究合作的具体可行步骤:总之,患者和社区的综合共同领导可以提供洞察力、进入社区接受教育和传播信息的机会,并确定需要改变的关键领域,从而加强研究。本报告可帮助其他人在这一过程中遵循基本原则。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Moving from Principle to Practice: A Researcher's Guide to Co-Leading Engaged Research with Community Partners and Patients with Lived Experience to Reduce Maternal Mortality and Morbidity for Maternal Sepsis.

Moving from Principle to Practice: A Researcher's Guide to Co-Leading Engaged Research with Community Partners and Patients with Lived Experience to Reduce Maternal Mortality and Morbidity for Maternal Sepsis.

Objectives: Maternal mortality and morbidity disproportionately affect birthing people from racialized populations. Unfortunately, researchers can often compound these poor outcomes through a lack of authentic community engagement in research beyond the role of the research subject, leading to ineffective strategies for improving care and increasing equity. This article details the real-life strategies utilized to develop a community-engaged research project of a phased federally funded grant employing community engagement principles of co-leadership and co-creation. It also includes reflections from the researchers and advisory board on promising practices and lessons learned for equitably engaging patients and community partners in research.

Methods: This article details the application of principles of community-engaged research in a federally funded phased research project focused on understanding disparities in maternal sepsis to develop better clinical and community interventions. Specifically, it discusses early steps in the research partnership to create a sustainable partnership with a Community Leadership Board guided by the principles of transparency, respect, compensation, and increasing research justice.

Results: Based on the authors' experience, recommendations are provided for funders, researchers, and institutions to improve the quality and outcomes of communityengaged research. This work adds to community-based participatory and community-engaged research literature by providing concrete and practical steps for equitably engaging in research partnerships with a variety of collaborators.

Conclusions: In conclusion, integrated patient and community co-leadership enhances research by providing insight, access to communities for education and dissemination of information, and identifying critical areas needing change. This report may help others address fundamental principles in this journey.

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来源期刊
Maternal and Child Health Journal
Maternal and Child Health Journal PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
3.20
自引率
4.30%
发文量
271
期刊介绍: Maternal and Child Health Journal is the first exclusive forum to advance the scientific and professional knowledge base of the maternal and child health (MCH) field. This bimonthly provides peer-reviewed papers addressing the following areas of MCH practice, policy, and research: MCH epidemiology, demography, and health status assessment Innovative MCH service initiatives Implementation of MCH programs MCH policy analysis and advocacy MCH professional development. Exploring the full spectrum of the MCH field, Maternal and Child Health Journal is an important tool for practitioners as well as academics in public health, obstetrics, gynecology, prenatal medicine, pediatrics, and neonatology. Sponsors include the Association of Maternal and Child Health Programs (AMCHP), the Association of Teachers of Maternal and Child Health (ATMCH), and CityMatCH.
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