"非自然资源?":纽芬兰基因组与传统资源部门之间的相似之处和区别。

IF 1.5 Q4 GENETICS & HEREDITY
Journal of Community Genetics Pub Date : 2024-08-01 Epub Date: 2024-06-19 DOI:10.1007/s12687-024-00715-w
Janelle Skeard
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引用次数: 0

摘要

纽芬兰省和拉布拉多半岛(NL)有着悠久的资源开发、利用和频繁管理不善的历史。甚至在 1949 年加入加拿大联邦之前,采矿、渔业和林业等行业就已经在很大程度上影响了该省的发展。最近,一种新的 "资源 "得到了认可:北领地的基因数据经常被描述为 "基因金矿 "和 "新石油"。这些比喻反映了遗传数据是一种宝贵的资源,在一个历史上依赖资源开采的省份引起了共鸣。自 21 世纪初以来,北大西洋公约组织的基因数据已被视为一种独特的资产,促使该省就基因数据的管理提交了报告。随着当地一家生物技术公司旨在利用北大西洋鲑鱼岛独特的基因结构,人们对该公司的兴趣再次升温。本文探讨了将遗传信息概念化为一种资源的意义,探讨了这一概念如何与现有的资源开发框架和政策相适应,并考虑了这一概念在制定管理遗传数据利用的收益和负担的政策方面的潜力。我的结论是,虽然北荷兰基因组不是传统意义上的自然资源,但该省需要对其开发承担更直接的责任,并确保与民众分享开发基因组所带来的任何潜在利益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Unnatural resources?": parallels and distinctions between the Newfoundland Genome and traditional resource sectors.

Newfoundland and Labrador (NL) has a long history of resource development, exploitation, and frequent mismanagement. Even before joining the Canadian confederation in 1949, industries such as mining, fishing, and forestry had significantly shaped the province. Recently, a new "resource" has been recognized: NL's genetic data, often described as a "genetic gold mine" and "the new oil." These analogies reflect the perception of genetic data as a valuable resource, resonating in a province historically reliant on resource extraction. Since the early 2000s, NL's genetic data has been recognized as a unique asset, prompting provincial reports on its management. Renewed interest has emerged with a local biotechnology company aiming to leverage NL's unique genetic architecture. This paper examines the implications of conceptualizing genetic information as a resource, exploring how this fits within existing resource development frameworks and policies, and considering its potential to shape policies for managing the benefits and burdens of genetic data exploitation. I conclude that while the NL genome is not a natural resource in the traditional sense, the province nevertheless needs to take more direct responsibility for its development and to ensure that any potential benefits from exploiting it are shared with the population.

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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
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