开发支持儿童发育迟缓跨学科研究的数据储存库:英国皇家研究院全球儿童发育迟缓研究基金行动中心协议文件。

IF 2 4区 医学 Q2 PEDIATRICS
Kaitlin Conway-Moore, Darius Tetsa Tata, Peter Wood, Val Katerinchuk, D M Dinesh Yadav, Little Flower Augustine, Manne Munikumar, Assana Diop, Fassiatou Tairou, Modou Lamin Jobarteh, Bharati Kulkarni, Babacar Faye, Paul Haggarty, Claire Heffernan
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引用次数: 0

摘要

导言:作为一项研究课题,跨学科研究项目的数据管理尚处于起步阶段。关键问题包括研究人员无法有效查询各种数据输出,也无法识别特定学科数据之间潜在的重要协同作用。同样存在问题的是,能更好地支持数据组织和发现的语义本体很少。最后,虽然跨学科研究被广泛认为有利于解开复杂的问题,但政策制定者和规划者等非研究人员往往难以使用和查询相关数据集。为了解决这些问题,以下文章详细介绍了英国皇家研究院全球研究基金对抗发育迟缓行动中心(AASH)的全中心数据存储库(AHDR)的设计与开发:AHDR是一个基于网络的单一应用、单一验证平台,包括一个数据仓库,用于存储AASH三个研究国家的数据,并支持数据查询。下文将介绍 AHDR 的四个新组件:(1)一个独特的数据发现工具;(2)一个元数据目录,为研究人员提供一个界面,用于探索AASH的数据输出,并使用与儿童发育迟缓有关的新语义本体;(3)一个跨学科辅助工具,支持以定向方法确定AASH数据之间的协同作用和相互作用;(4)一个决策支持工具,支持非研究人员使用AASH更广泛的循证输出:英国、印度、印度尼西亚和塞内加尔的机构伦理委员会批准了这项研究。研究结果将通过以下方式传播:在同行评审期刊上发表文章;在国际会议和社区层面的公众参与活动中发表演讲;召开主要利益相关者会议;以及在公共资料库中使用适当的知识共享许可,以便尽可能广泛地使用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Developing a data repository to support interdisciplinary research into childhood stunting: a UKRI GCRF Action Against Stunting Hub protocol paper.

Introduction: As a topic of inquiry in its own right, data management for interdisciplinary research projects is in its infancy. Key issues include the inability of researchers to effectively query diverse data outputs and to identify potentially important synergies between discipline-specific data. Equally problematic, few semantic ontologies exist to better support data organisation and discovery. Finally, while interdisciplinary research is widely regarded as beneficial to unpacking complex problems, non-researchers such as policy-makers and planners often struggle to use and interrogate the related datasets. To address these issues, the following article details the design and development of the UKRI GCRF Action Against Stunting Hub (AASH)'s All-Hub Data Repository (AHDR).

Methods and analysis: The AHDR is a single application, single authentication web-based platform comprising a data warehouse to store data from across the AASH's three study countries and to support data querying. Four novel components of the AHDR are described in the following article: (1) a unique data discovery tool; (2) a metadata catalogue that provides researchers with an interface to explore the AASH's data outputs and engage with a new semantic ontology related to child stunting; (3) an interdisciplinary aid to support a directed approach to identifying synergies and interactions between AASH data and (4) a decision support tool that will support non-researchers in engaging with the wider evidence-based outputs of the AASH.

Ethics and dissemination: Ethical approval for this study was granted by institutional ethics committees in the UK, India, Indonesia and Senegal. Results will be disseminated via publications in peer-reviewed journals; presentations at international conferences and community-level public engagement events; key stakeholder meetings; and in public repositories with appropriate Creative Commons licences allowing for the widest possible use.

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来源期刊
BMJ Paediatrics Open
BMJ Paediatrics Open Medicine-Pediatrics, Perinatology and Child Health
CiteScore
4.10
自引率
3.80%
发文量
124
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