[健康捐献者外周血干细胞采集前后健康调查网络应用的实用性]。

Yosuke Makuuchi, Hiroshi Okamura, Yukari Umemoto, Akinori Nishikawa, Rie Tanaka, Akari Sato, Kazuki Sakatoku, Kentaro Ido, Mirei Horiuchi, Masatomo Kuno, Teruhito Takakuwa, Mitsutaka Nishimoto, Yasuhiro Nakashima, Mika Nakamae, Shingo Yano, Masayuki Hino, Hirohisa Nakamae
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引用次数: 0

摘要

评估外周血造血干细胞采集(PBSCH)后不良事件的健康调查通常通过电话进行,但电话并不适合进行频繁的调查。我们开发了一种基于网络的应用程序(捐献者应用程序),使捐献者能够以电子患者报告结果(ePRO)的形式向医疗保健专业人员(HCPs)通报自己的健康状况。在这项前瞻性观察研究中,我们比较了这款捐献者应用程序和电话进行健康调查的实用性。应用程序用户每天都会报告电子患者报告结果,而被医疗保健人员致电的患者每周至少会报告一次自己的健康状况。观察期为首次施用粒细胞集落刺激因子至 PBSCH 后的首次随访,不包括住院期间。每组有 8 名捐献者,中位年龄为 32 岁(19-58 岁)。其中九人(56.3%)为女性。电话组中有 8 名相关捐献者,捐献者应用程序组中有 4 名相关捐献者。在观察期内,保健医生从应用程序用户处获得健康状况报告的频率高于从电话受捐者处获得报告的频率(观察期内报告天数的平均比例为 27.0% vs 53.5%;P<0.05)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Usefulness of web-based application for health surveys before and after peripheral blood stem cell harvest from healthy donors].

Health surveys to assess adverse events after peripheral blood stem cell harvest (PBSCH) have conventionally been conducted by phone, but phone calls are suboptimal for conducting frequent surveys. We developed a web-based application (donor app) that enables donors to inform healthcare professionals (HCPs) of their health status as an electronic patient-reported outcome (ePRO). In this prospective observational study, we compared the usefulness of this donor app to phone calls for conducting health surveys. App users reported ePRO daily, and patients called by HCPs reported their health status at least once a week when called. The observation period was from the first administration of granulocyte colony-stimulating factor to the first follow-up visit after PBSCH, excluding the hospitalization period. Each group consisted of eight donors with a median age of 32 years (range: 19-58). Nine (56.3%) were female. There were eight related donors in the phone call group and four in the donor app group. During the observation period, HCPs obtained health status reports more frequently from app users than from phone call recipients (mean proportion of days with reports made during the observation period, 27.0% vs 53.5%; p<0.05). Average time spent by the HCPs for one follow-up and total follow-ups were both significantly shorter when the donor app was used. There were no differences in donor burden or satisfaction with donation. Our study suggests that use of a donor app could provide more detailed health survey data without increasing the burden on donors and HCPs.

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