社交媒体上反映的妇女接受医疗流产护理的经历(VEILLE 研究):非干预性回顾性探索信息学研究。

IF 3.5 Q1 HEALTH CARE SCIENCES & SERVICES
JMIR infodemiology Pub Date : 2024-05-02 DOI:10.2196/49335
Giulia Gouy, Luisa Attali, Paméla Voillot, Patrick Fournet, Aubert Agostini
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引用次数: 0

摘要

背景:人工流产(也称终止妊娠)是妇女生殖保健的重要组成部分。接受医学终止妊娠的妇女对其经历的反馈至关重要,这有助于从业人员确定妇女的需求,并开发必要的工具来改进人工流产护理流程。然而,收集这些反馈意见是一项相当具有挑战性的工作。社交媒体为分享堕胎经历的女性提供了匿名性:这项探索性信息病理学研究旨在通过法国社交媒体上的帖子,分析与药物流产过程相关的个人医疗症状、不同经历和信息动态:这项回顾性研究分析了2017年1月1日至2021年11月30日期间在法国发布的帖子。研究人员使用特定关键词从所有法语的普通和专业公开网络论坛中提取帖子。对提取的信息进行了清理和化名处理。使用自动自然语言处理方法来识别经历过药物流产的女性的帖子。使用 Biterm 主题建模来确定主要讨论主题,并使用《监管活动医学词典》来确定医学术语。使用定性研究方法探讨了遇到的困难,直到概念达到饱和:通过对 5398 个已识别帖子(3409 名用户)的分析,确定了 9 个主要议题:个人经历(2413 个帖子,44.7%)、社区支持(1058 个帖子,19.6%)、疼痛和出血(797 个帖子,14.8%)、心理体验(n=760,14.1%)、疗效质疑(n=410,7.6%)、社会压力(n=373,6.9%)、积极体验(n=257,4.8%)、月经周期紊乱(n=107,2%)和报告的无效(n=104,1.9%)。在 3409 名用户中,有 1024 人(30.0%)在 5398 个帖子中的 1627 个帖子(30.1%)中提到了疼痛,疼痛是最常报告的医学术语。24.5%的病例(1627 个帖子中的 399 个)认为疼痛严重到难以忍受。缺乏信息是用户在使用过程中和使用后最常遇到的困难:我们的研究结果表明,法国妇女利用社交媒体分享她们的经历,提供和寻求支持,并提供和接收有关药物流产的信息。信息胚胎学似乎是获得妇女反馈的有用工具,因此为加强对接受药物流产的妇女的护理提供了机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of Women With Medical Abortion Care Reflected in Social Media (VEILLE Study): Noninterventional Retrospective Exploratory Infodemiology Study.

Background: Abortion (also known as termination of pregnancy) is an essential element of women's reproductive health care. Feedback from women who underwent medical termination of pregnancy about their experience is crucial to help practitioners identify women's needs and develop necessary tools to improve the abortion care process. However, the collection of this feedback is quite challenging. Social media offer anonymity for women who share their abortion experience.

Objective: This exploratory infodemiology study aimed to analyze, through French social media posts, personal medical symptoms and the different experiences and information dynamics associated with the medical abortion process.

Methods: A retrospective study was performed by analyzing posts geolocated in France and published from January 1, 2017, to November 30, 2021. Posts were extracted from all French-language general and specialized publicly available web forums using specific keywords. Extracted messages were cleaned and pseudonymized. Automatic natural language processing methods were used to identify posts from women having experienced medical abortion. Biterm topic modeling was used to identify the main discussion themes and the Medical Dictionary for Regulatory Activities was used to identify medical terms. Encountered difficulties were explored using qualitative research methods until the saturation of concepts was reached.

Results: Analysis of 5398 identified posts (3409 users) led to the identification of 9 major topics: personal experience (n=2413 posts, 44.7%), community support (n=1058, 19.6%), pain and bleeding (n=797, 14.8%), psychological experience (n=760, 14.1%), questioned efficacy (n=410, 7.6%), social pressure (n=373, 6.9%), positive experiences (n=257, 4.8%), menstrual cycle disorders (n=107, 2%), and reported inefficacy (n=104, 1.9%). Pain, which was mentioned in 1627 (30.1%) of the 5398 posts by 1024 (30.0%) of the 3409 users, was the most frequently reported medical term. Pain was considered severe to unbearable in 24.5% of the cases (399 of the 1627 posts). Lack of information was the most frequently reported difficulty during and after the process.

Conclusions: Our findings suggest that French women used social media to share their experiences, offer and find support, and provide and receive information regarding medical abortion. Infodemiology appears to be a useful tool to obtain women's feedback, therefore offering the opportunity to enhance care in women undergoing medical abortion.

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