个性化医疗的全球治理》、《不确定性政治》和《皮埃尔-布尔迪厄》。

IF 2.2 3区 生物学 Q3 BIOTECHNOLOGY & APPLIED MICROBIOLOGY
Omics A Journal of Integrative Biology Pub Date : 2024-05-01 Epub Date: 2024-05-06 DOI:10.1089/omi.2024.0091
Vural Özdemir
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引用次数: 0

摘要

我们选择如何应对不确定性,这对科学的稳健和负责任至关重要。新法律和共识报告是全球治理新兴技术和随之而来的不确定性的常用工具。然而,社会学家皮埃尔-布尔迪厄(Pierre Bourdieu)指出:"司法状况就像一个中性空间,通过将当事人之间的直接斗争转化为调解人之间的对话所隐含的去现实化和疏远,中和了任何冲突中的利害关系。换言之,法律和法律推理模式固然有助于冲突的解决和终结,但在新兴技术和不确定性治理中过度使用它们,有可能将民主治理所需的斗争和异议转化为 "调解人之间的对话",从而带来去政治化。因此,布尔迪厄提出的批判性社会学视角对于全球多组学技术治理的民主化尤为重要,对于当前个性化医疗的普及也恰逢其时。例如,2023 年 5 月,罗马尼亚政府出台了一项法律,赋予患者个性化医疗的权利。个性化医疗与治疗学(theranostics)这一更广义的概念和领域相关,即治疗学与诊断学的融合。因此,考虑到 21 世纪未来可能出现的流行病和生态危机,对 "地球健康中的治疗学权利 "进行反思是非常及时的。以严谨的政治理论、法律社会学和批判性法律研究为基础的不同意见,可以加强个性化医疗和多组学技术的民主化和全球治理,而不是在创新生态系统中强迫达成共识或趋同。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Global Governance for Personalized Medicine, Politics of Uncertainty, and Pierre Bourdieu.

How we choose to respond to uncertainty matters for robust and responsible science. New laws and consensus reports are popular instruments for global governance of emerging technology and attendant uncertainty. However, the sociologist Pierre Bourdieu noted that "[t]he judicial situation operates like a neutral space that neutralizes the stakes in any conflict through the de-realization and distancing implicit in the conversion of a direct struggle between parties into a dialogue between mediators." Put in other words, while law and legal modes of reasoning are certainly useful for conflict resolution and closure, their overprivileging in emerging technology and uncertainty governance can potentially bring about depoliticization by transforming the struggles and dissent necessary for democratic governance into a "dialogue between mediators." Hence, the critical sociological gaze offered by Bourdieu is particularly relevant for democratization of global governance of multiomics technologies and timely with the current uptake of personalized medicine. For example, in May 2023, the Romanian government introduced a law to give patients the right to personalized medicine. Personalized medicine is related to the larger umbrella concept and field of theranostics, the fusion of therapeutics and diagnostics. It is therefore timely to reflect on a "right for theranostics in planetary health," considering the potential for future pandemics and ecological crises in the 21st century. Rather than forcing consensus or convergence in an innovation ecosystem, dissent grounded in rigorous political theory, sociology of law and critical legal studies can strengthen democratization and global governance for personalized medicine and multiomics technologies.

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来源期刊
Omics A Journal of Integrative Biology
Omics A Journal of Integrative Biology 生物-生物工程与应用微生物
CiteScore
6.00
自引率
12.10%
发文量
62
审稿时长
3 months
期刊介绍: OMICS: A Journal of Integrative Biology is the only peer-reviewed journal covering all trans-disciplinary OMICs-related areas, including data standards and sharing; applications for personalized medicine and public health practice; and social, legal, and ethics analysis. The Journal integrates global high-throughput and systems approaches to 21st century science from “cell to society” – seen from a post-genomics perspective.
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