过渡到成人风湿病护理:特定疾病指南》。

IF 2.4 4区 医学 Q2 RHEUMATOLOGY
JCR: Journal of Clinical Rheumatology Pub Date : 2024-06-01 Epub Date: 2024-03-25 DOI:10.1097/RHU.0000000000002062
Dahima Cintron, Joyce C Chang, Rebecca E Sadun
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引用次数: 0

摘要

摘要:患有儿童期发病风湿病的年轻成人越来越多地接受成人风湿病医生的治疗。对于年轻的成人患者和他们的成人风湿病医生来说,转院治疗都是一项挑战,这在很大程度上是由于儿科发病的风湿病与成人发病的风湿病之间存在差异,或者由于某些儿科发病的风湿病比较罕见。其他挑战还包括儿科医疗与成人医疗之间的文化差异,以及年轻成人需要越来越多地掌握自我管理技能,而这些技能以前是由父母或其他照顾者管理的。在这篇综述中,我们将总结在年轻成人过渡到成人医疗时与他们有效合作的策略。然后,我们将讨论一组儿童期发病的风湿性疾病--包括幼年特发性关节炎、局部硬皮病、自身炎症性疾病、儿童期发病的系统性红斑狼疮、幼年期发病的皮肌炎和自身免疫性脑炎,这些疾病的临床表现、管理和预后在儿童期发病和成年期发病之间常常存在差异。我们的目的是强调不同之处,从而为这一过渡时期的年轻成人群体提供独特的护理,提供工具和知识,使成年风湿病学家能够以循证、有效、高效和有益的方式为这些年轻成人提供护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Transition to Adult Rheumatology Care: A Disease-Specific Guide.

Abstract: Young adults with childhood-onset rheumatic diseases are more frequently establishing and continuing care with adult rheumatologists. The transfer of care can be challenging for both the young adult patients and their adult rheumatologists, in large part due to differences between pediatric-onset rheumatic diseases and their adult-onset counterparts, or due to the rarity of some pediatric-onset rheumatic conditions. Other challenges are due to cultural differences between pediatric and adult medical care and to the young adult needing to increasingly perform self-management skills that were previously managed by parents or other caregivers. In this review, we will provide a summary of strategies for working effectively with young adults as they transition to adult care. We will then discuss a subset of childhood-onset rheumatic diseases-including juvenile idiopathic arthritis, localized scleroderma, autoinflammatory diseases, pediatric-onset systemic lupus erythematosus, juvenile-onset dermatomyositis, and autoimmune encephalitis-for which clinical manifestations, management, and prognosis frequently differ between pediatric onset and adult onset. Our aim is to highlight differences that make caring for this population of transitioning young adults unique, providing tools and knowledge to empower the adult rheumatologist to care for these young adults in ways that are evidence-based, effective, efficient, and rewarding.

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来源期刊
CiteScore
3.50
自引率
2.90%
发文量
228
审稿时长
4-8 weeks
期刊介绍: JCR: Journal of Clinical Rheumatology the peer-reviewed, bimonthly journal that rheumatologists asked for. Each issue contains practical information on patient care in a clinically oriented, easy-to-read format. Our commitment is to timely, relevant coverage of the topics and issues shaping current practice. We pack each issue with original articles, case reports, reviews, brief reports, expert commentary, letters to the editor, and more. This is where you''ll find the answers to tough patient management issues as well as the latest information about technological advances affecting your practice.
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