为脊髓损伤研究和康复中的自主权制定以人为本的伦理框架。

IF 2.2 4区医学 Q1 REHABILITATION

PM&R Pub Date : 2024-10-01 Epub Date: 2024-03-23 DOI:10.1002/pmrj.13146

Anna Nuechterlein, Alexandra Olmos Pérez, Fabio Rossi, Jody Swift, Andrea Townson, Judy Illes

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引用次数: 0

摘要

在本文中，我们探讨了学术文献是如何在脊髓损伤的背景下理解自主性和自主选择的概念的，既包括对研究成果的报道，也包括对结果和生活质量的更广泛报道。我们发现，对自主性的描述前后不一，缺乏框架，也缺乏借鉴伦理建构和理论的论述。为此，我们提出了一个以人为本的脊髓损伤研究框架，该框架结合了生活经验和残疾伦理方法，以填补这一空白。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Toward a person-centered ethics framework for autonomy in spinal cord injury research and rehabilitation.

In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework-absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person-centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap.

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来源期刊

PM&R REHABILITATION-SPORT SCIENCES

CiteScore

4.30

自引率

4.80%

发文量

187

审稿时长

4-8 weeks

期刊介绍： Topics covered include acute and chronic musculoskeletal disorders and pain, neurologic conditions involving the central and peripheral nervous systems, rehabilitation of impairments associated with disabilities in adults and children, and neurophysiology and electrodiagnosis. PM&R emphasizes principles of injury, function, and rehabilitation, and is designed to be relevant to practitioners and researchers in a variety of medical and surgical specialties and rehabilitation disciplines including allied health.