Mariska Scheffer , Juliane Menting , Hennie Boeije , Ruth van Nispen , Sandra van Dulmen
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Study quality was assessed using standard checklists of quality measures. Our search returned 31 eligible articles. Findings indicated current deficits in information provision for people with AMD. Patients were often ill-informed regarding the chronic character of the condition, treatment duration, nutrition, and visual aids and low vision rehabilitation. Many patients were not actively involved during the decision-making process. Altogether, patients with AMD are faced with challenges in terms of patient-HCP communication. Methods of providing information and discussing possible options for care need to be further investigated and improved for this patient group.</p></div>","PeriodicalId":22102,"journal":{"name":"Survey of ophthalmology","volume":null,"pages":null},"PeriodicalIF":5.1000,"publicationDate":"2024-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0039625724000183/pdfft?md5=de4b58e9b73c0ab6eefe5c5a258f3ba9&pid=1-s2.0-S0039625724000183-main.pdf","citationCount":"0","resultStr":"{\"title\":\"Understanding healthcare communication in age-related macular degeneration care: A mixed-methods review of patients’ perspectives\",\"authors\":\"Mariska Scheffer , Juliane Menting , Hennie Boeije , Ruth van Nispen , Sandra van Dulmen\",\"doi\":\"10.1016/j.survophthal.2024.03.002\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p>Age-related macular degeneration (AMD) is the most common cause of irreversible visual impairment among people aged 50 years and older. Earlier research has indicated that the communication process between patients and healthcare professionals (HCPs) leaves considerable room for improvement in AMD care. Effective communication is essential to enhance trust in the professional and understanding of the diagnosis and treatment, and decrease anxiety and stress related to illness. We review patients’ experiences, needs and preferences regarding information provision, communication style of the HCP and shared decision-making. We conducted a systematic search in PubMed, Embase, PsycINFO, CINAHL and Web of Science. Study quality was assessed using standard checklists of quality measures. Our search returned 31 eligible articles. Findings indicated current deficits in information provision for people with AMD. Patients were often ill-informed regarding the chronic character of the condition, treatment duration, nutrition, and visual aids and low vision rehabilitation. Many patients were not actively involved during the decision-making process. Altogether, patients with AMD are faced with challenges in terms of patient-HCP communication. 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引用次数: 0
摘要
年龄相关性黄斑变性(AMD)是导致 50 岁及以上人群出现不可逆视力损伤的最常见原因。早前的研究表明,在老年黄斑变性的治疗过程中,患者与医护人员(HCPs)之间的沟通还有很大的改进空间。有效的沟通对于增强对专业人员的信任、了解诊断和治疗方法、减少与疾病相关的焦虑和压力至关重要。我们回顾了患者在信息提供、医护人员沟通方式和共同决策方面的经验、需求和偏好。我们在 PubMed、Embase、PsycINFO、CINAHL 和 Web of Science 中进行了系统检索。研究质量采用标准的质量衡量检查表进行评估。我们检索到了 31 篇符合条件的文章。研究结果表明,目前在为老年性痴呆患者提供信息方面存在不足。患者往往不了解病情的慢性特征、治疗时间、营养、助视器和低视力康复等方面的信息。许多患者在决策过程中并不积极参与。总之,AMD 患者在与医护人员沟通方面面临着挑战。需要进一步研究和改进为这一患者群体提供信息和讨论可能的护理方案的方法。
Understanding healthcare communication in age-related macular degeneration care: A mixed-methods review of patients’ perspectives
Age-related macular degeneration (AMD) is the most common cause of irreversible visual impairment among people aged 50 years and older. Earlier research has indicated that the communication process between patients and healthcare professionals (HCPs) leaves considerable room for improvement in AMD care. Effective communication is essential to enhance trust in the professional and understanding of the diagnosis and treatment, and decrease anxiety and stress related to illness. We review patients’ experiences, needs and preferences regarding information provision, communication style of the HCP and shared decision-making. We conducted a systematic search in PubMed, Embase, PsycINFO, CINAHL and Web of Science. Study quality was assessed using standard checklists of quality measures. Our search returned 31 eligible articles. Findings indicated current deficits in information provision for people with AMD. Patients were often ill-informed regarding the chronic character of the condition, treatment duration, nutrition, and visual aids and low vision rehabilitation. Many patients were not actively involved during the decision-making process. Altogether, patients with AMD are faced with challenges in terms of patient-HCP communication. Methods of providing information and discussing possible options for care need to be further investigated and improved for this patient group.
期刊介绍:
Survey of Ophthalmology is a clinically oriented review journal designed to keep ophthalmologists up to date. Comprehensive major review articles, written by experts and stringently refereed, integrate the literature on subjects selected for their clinical importance. Survey also includes feature articles, section reviews, book reviews, and abstracts.