Jessica Hooper, Nikie Jervis, Lucy Morgan, Vivienne Beckett, Philippa Hand, Kate Higgs, Alia Munir, Jenny Prinn, D Mark Pritchard, Debashis Sarker, Raj Srirajaskanthan, Catherine Bouvier Ellis
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引用次数: 0
摘要
神经内分泌肿瘤(NENs)患者面临着诸多挑战,包括诊断延迟、医护人员对癌症的认识不足以及获得多学科护理和专家中心服务的机会有限。我们为英格兰的 NENs 患者制定了首个患者护理路径,以指导疾病管理并帮助克服这些障碍。该路径分两个阶段制定。首先,我们对文献进行了务实的回顾,并以此为基础制定了患者护理路径草案。其次,在与精心挑选的专家利益相关者进行半结构化访谈后,对路径草案进行了更新。每个阶段结束后,多学科专家咨询小组(由作者和西萨福克 NHS 基金会信托基金会副首席运营官组成)对路径进行讨论,并就理想的护理路径达成共识。本文介绍了这项研究的成果。该路径确定了护理的主要障碍,并强调了如何解决这些障碍,其中许多发现与英国其他地区和国际受众相关。在英格兰,非传染性疾病的发病率和流行率不断上升,加剧了诊断和疾病管理方面原有的不公平现象。在英格兰国家医疗服务体系内有效整合该路径将有助于为所有鼻咽癌患者提供最佳、公平的治疗,而且在全国现有的多学科专家团队内应该是可行的。
Neuroendocrine neoplasms: Consensus on a patient care pathway
People with neuroendocrine neoplasms (NENs) face a multitude of challenges, including delayed diagnosis, low awareness of the cancer among healthcare professionals and limited access to multidisciplinary care and expert centres. We have developed the first patient care pathway for people living with NENs in England to guide disease management and help overcome these barriers. The pathway was developed in two phases. First, a pragmatic review of the literature was conducted, which was used to develop a draft patient care pathway. Second, the draft pathway was then updated following semi-structured interviews with carefully selected expert stakeholders. After each phase, the pathway was discussed among a multidisciplinary, expert advisory group (which comprised the authors and the Deputy Chief Operating Officer, West Suffolk NHS Foundation Trust), who reached a consensus on the ideal care pathway. This article presents the outputs of this research. The pathway identified key barriers to care and highlighted how these may be addressed, with many of the findings relevant to the rest of the UK and international audiences. NENs are increasing in incidence and prevalence in England, compounding pre-existing inequities in diagnosis and disease management. Effective integration of this pathway within NHS England will help achieve optimal, equitable care provision for all people with NENs, and should be feasible within the existing expert multidisciplinary teams across the country.
期刊介绍:
Journal of Neuroendocrinology provides the principal international focus for the newest ideas in classical neuroendocrinology and its expanding interface with the regulation of behavioural, cognitive, developmental, degenerative and metabolic processes. Through the rapid publication of original manuscripts and provocative review articles, it provides essential reading for basic scientists and clinicians researching in this rapidly expanding field.
In determining content, the primary considerations are excellence, relevance and novelty. While Journal of Neuroendocrinology reflects the broad scientific and clinical interests of the BSN membership, the editorial team, led by Professor Julian Mercer, ensures that the journal’s ethos, authorship, content and purpose are those expected of a leading international publication.