{"title":"社区关怀：探索孟买巴斯提斯为残疾人提供的自然和正式支持","authors":"Srishti Jaitely, Navjit Gaurav","doi":"10.1007/s10882-024-09947-7","DOIUrl":null,"url":null,"abstract":"<p>Mumbai is home to over 22 million people, of which 41.3% are estimated to live in bastis with limited access to basic facilities and support. The number of people with disabilities living in Mumbai was 0.48 million in 2011, expected to rise to 4 million by 2025. For people with disabilities to live a better quality of life, they require a combination of support from the community for their day-to-day living and formal support for their rehabilitation. This study used a qualitative exploratory approach and explored the benefit of integrated support (natural + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natural supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these supports make life easier and more meaningful for people with disabilities.</p>","PeriodicalId":47565,"journal":{"name":"Journal of Developmental and Physical Disabilities","volume":"5 1","pages":""},"PeriodicalIF":1.5000,"publicationDate":"2024-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai\",\"authors\":\"Srishti Jaitely, Navjit Gaurav\",\"doi\":\"10.1007/s10882-024-09947-7\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>Mumbai is home to over 22 million people, of which 41.3% are estimated to live in bastis with limited access to basic facilities and support. The number of people with disabilities living in Mumbai was 0.48 million in 2011, expected to rise to 4 million by 2025. For people with disabilities to live a better quality of life, they require a combination of support from the community for their day-to-day living and formal support for their rehabilitation. This study used a qualitative exploratory approach and explored the benefit of integrated support (natural + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natural supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these supports make life easier and more meaningful for people with disabilities.</p>\",\"PeriodicalId\":47565,\"journal\":{\"name\":\"Journal of Developmental and Physical Disabilities\",\"volume\":\"5 1\",\"pages\":\"\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-03-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Developmental and Physical Disabilities\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1007/s10882-024-09947-7\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"EDUCATION, SPECIAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Developmental and Physical Disabilities","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s10882-024-09947-7","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai
Mumbai is home to over 22 million people, of which 41.3% are estimated to live in bastis with limited access to basic facilities and support. The number of people with disabilities living in Mumbai was 0.48 million in 2011, expected to rise to 4 million by 2025. For people with disabilities to live a better quality of life, they require a combination of support from the community for their day-to-day living and formal support for their rehabilitation. This study used a qualitative exploratory approach and explored the benefit of integrated support (natural + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natural supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these supports make life easier and more meaningful for people with disabilities.
期刊介绍：
The Journal of Developmental and Physical Disabilities is an interdisciplinary forum for the publication of original research and clinical reports from a variety of fields serving persons with developmental and physical disabilities. Submissions from researchers, clinicians, and related professionals in the fields of psychology, rehabilitation, special education, kinesiology, counseling, social work, psychiatry, nursing, and rehabilitation medicine are considered. Investigations utilizing group comparisons as well as single-case experimental designs are of primary interest. In addition, case studies that are of particular clinical relevance or that describe innovative evaluation and intervention techniques are welcome. All research and clinical reports should contain sufficient procedural detail so that readers can clearly understand what was done, how it was done, and why the strategy was selected. Rigorously conducted replication studies utilizing group and single-case designs are welcome irrespective of results obtained. In addition, systematic reviews, meta-analyses, and theoretical discussions that contribute substantially to understanding the problems and strengths of persons with developmental and physical disabilities are considered for publication. Authors are encouraged to preregister empirical studies, replications, systematic reviews, and meta-analyses in a relevant public database and to include such information with their submission to the journal. Authors are also encouraged, where possible and applicable, to deposit data that support the findings of their research in a public repository (see detailed “Research Data Policy” module in the journal’s Instructions for Authors). In response to the need for increased clinical and research endeavors with persons with developmental and physical disabilities, the journal is cross-categorical and unbiased methodologically.
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