在罕见病诊断奥德赛中迷失方向

IF 8.6 1区医学 Q1 HEALTH CARE SCIENCES & SERVICES

Health Affairs Pub Date : 2024-03-01 DOI:10.1377/hlthaff.2023.01001

Kara A Ayik

引用次数: 0

摘要

一位母亲讲述了她儿子的罕见病诊断之旅，以及医疗服务提供者如何在这一路上辜负了他们母子俩的期望。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

Losing Our Way In A Rare Disease Diagnostic Odyssey.

A mother shares the story of her son's rare disease diagnostic journey and how providers failed them both along the way.

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来源期刊

Health Affairs 医学-卫生保健

CiteScore

15.00

自引率

2.10%

发文量

246

审稿时长

3-6 weeks

期刊介绍： Health Affairs is a prestigious journal that aims to thoroughly examine significant health policy matters both domestically and globally. Our publication is committed to addressing issues that are relevant to both the private and public sectors. We are enthusiastic about inviting private and public decision-makers to contribute their innovative ideas in a publishable format. Health Affairs seeks to incorporate various perspectives from industry, labor, government, and academia, ensuring that our readers benefit from the diverse viewpoints within the healthcare field.