[预先护理计划(ACP)与血液透析:透析室应用意大利第 219/2017 号法律的试点项目]。

Q4 Medicine
Cristina Tantardini, Clara Pelizzari
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引用次数: 0

摘要

第 219/2017 号法律是意大利第一部关于晚期护理规划 (ACP) 的法律。ACP 是患者与医生之间治疗关系的重要组成部分:有了 ACP,患者可以思考和讨论生命终结的决定,不仅考虑临床方面,还考虑心理、文化、社会和伦理问题。由于未来可能出现认知障碍,患者可以提前做好准备,确定代理决策者,并根据自己的目标和价值观做出生命终结的决定。终末期肾病(ESRD)通常具有重要的症状、心理痛苦和社会劣势,受ESRD影响的患者通常身体和认知能力都会缓慢衰退。尽管如此,与其他终末期器官衰竭的患者相比,这些患者获得姑息关怀的机会却较少。因此,我们希望探索将姑息治疗应用于 ESRD 患者的可能性。这项试点研究针对意大利 ASST Crema 透析室的三名患者,旨在验证第 219/2017 号法律在透析室的适用性。它表明,我们必须从卫生工作者和患者及家属的角度深入研究这一问题。我们需要进行更多的研究、更多的患者和更长的随访时间,但我们也需要教导卫生工作者如何对待 APC,教导人们什么是 APC 以及为什么它对每个人都如此重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Advanced Care Planning (ACP) and Hemodialysis: a Pilot Project for the Application of Italian Law 219/2017 in Dialysis Units].

The law 219/2017 is the first Italian law about advanced care planning (ACP). ACP is an important part of the therapeutic relationship between patients and doctors: thanks to ACP patients can think and discuss about end of life decisions, considering clinical aspects, but also psychological, cultural, social and ethical issues. Patients prepare themselves in advance because of the possibility of future cognitive impairment, can identify a surrogate decision maker and make end-life decisions according to their goals and values. End-stage kidney disease (ESRD) is often characterized by important symptoms, psychological suffering and social disadvantage, and patients affected by ESRD often have slow physical and cognitive decline. Despite this, access to palliative care is reduced for these patients as compared to patients affected by other end-stage organ failures. This is the reason why we want to explore the possibility of applying APC to ESRD patients. This pilot study, regarding three patients from the Dialysis Unit of ASST Crema in Italy, has been conducted to verify the applicability of the law 219/2017 in Dialysis Units. It shows that we have to deeply investigate this issue from both sanitary workers' and patients' and families' points of view. We need more studies with a larger number of patients and a longer period of follow-up, but we also need to teach sanitary workers how to approach APC and to teach people what APC is and why it's so important for everyone.

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来源期刊
CiteScore
0.70
自引率
0.00%
发文量
62
期刊介绍: Il Giornale Italiano di Nefrologia (GIN) è la rivista di educazione continua della Società Italiana di Nefrologia SIN ed è pubblicato bimestralmente. E" il più autorevole organo di informazione nefrologia disponibile a livello nazionale. Il giornale Italiano di Nefrologia offre la più aggiornata informazione medico-scientifica rivolta al nefrologo sotto forma di rassegne, casi clinici e articoli finalizzati all’Educazione Continua in Medicina, oltre ai notiziari ed agli atti dei congressi di questa prestigiosa Società Scientifica
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