{"title":"同伴推荐的脱发患者应对策略","authors":"Garrett E. Huck, Dana Brickham, Shaina Shelton","doi":"10.1027/2512-8442/a000141","DOIUrl":null,"url":null,"abstract":"Abstract: Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.","PeriodicalId":51983,"journal":{"name":"European Journal of Health Psychology","volume":null,"pages":null},"PeriodicalIF":1.3000,"publicationDate":"2024-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata\",\"authors\":\"Garrett E. Huck, Dana Brickham, Shaina Shelton\",\"doi\":\"10.1027/2512-8442/a000141\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Abstract: Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.\",\"PeriodicalId\":51983,\"journal\":{\"name\":\"European Journal of Health Psychology\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2024-02-15\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"European Journal of Health Psychology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1027/2512-8442/a000141\",\"RegionNum\":4,\"RegionCategory\":\"心理学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PSYCHOLOGY, CLINICAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"European Journal of Health Psychology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1027/2512-8442/a000141","RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 0
摘要
摘要:背景:斑秃(AA)是一种以头皮和/或身体脱发为特征的慢性免疫性疾病。药物治疗往往无效,许多患者对头发再生不抱希望。尽管脱发症患者的心理波动率很高,但很少有人考虑到这种疾病的独特影响以及应对方法的潜在益处。研究目的:本研究的目的是根据目前AA患者的建议,建立应对AA的策略基础。研究方法:190 名国际样本参与者分享了他们认为对 AA 患者有用的应对策略类型。采用定性内容分析法对参与者的回答进行编码和分组。结果显示常见的策略包括各种形式的社会支持和社会导航策略、视角转换、美容策略和程序,以及获得医疗和心理干预。局限性:参与者主要为女性。研究结果与现实生活中的结果不相关,只是传闻建议。结论:本研究的结果进一步支持了之前的研究,同时也提供了独特的视角。
Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata
Abstract: Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.
期刊介绍:
Die "Zeitschrift für Gesundheitspsychologie" wurde gegründet, um dem raschen Anwachsen gesundheitspsychologischer Forschung sowie deren Relevanz für verschiedene Anwendungsfelder gerecht zu werden. Gesundheitspsychologie versteht sich als wissenschaftlicher Beitrag der Psychologie zur Förderung und Erhaltung von Gesundheit, zur Verhütung und Behandlung von Krankheiten, zur Bestimmung von Risikoverhaltensweisen, zur Diagnose und Ursachenbestimmung von gesundheitlichen Störungen sowie zur Verbessung des Systems gesundheitlicher Vorsorge.