Richard Cheng, Michelle M Kittleson, Ashutosh D Wechalekar, Jose Alvarez-Cardona, Joshua D Mitchell, Ariane Vieira Scarlatelli Macedo, Joao Pedro Passos Dutra, Courtney M Campbell, Jennifer E Liu, Heather J Landau, Margot K Davis, Siobhain Morrissey, Stephen Casselli, Isabelle Lousada, Juliane Dantas Seabra-Garcez, Roberta Shcolnik Szor, Sarju Ganatra, Barry Trachtenberg, Mathew S Maurer, Keith Stockerl-Goldstein, Daniel Lenihan
{"title":"逐步建立心脏淀粉样变性卓越中心:国际心脏肿瘤学会声明。","authors":"Richard Cheng, Michelle M Kittleson, Ashutosh D Wechalekar, Jose Alvarez-Cardona, Joshua D Mitchell, Ariane Vieira Scarlatelli Macedo, Joao Pedro Passos Dutra, Courtney M Campbell, Jennifer E Liu, Heather J Landau, Margot K Davis, Siobhain Morrissey, Stephen Casselli, Isabelle Lousada, Juliane Dantas Seabra-Garcez, Roberta Shcolnik Szor, Sarju Ganatra, Barry Trachtenberg, Mathew S Maurer, Keith Stockerl-Goldstein, Daniel Lenihan","doi":"10.1136/heartjnl-2023-323502","DOIUrl":null,"url":null,"abstract":"<p><p>The prevalence of amyloidosis has been increasing, driven by a combination of improved awareness, evolution of diagnostic pathways, and effective treatment options for both transthyretin and light chain amyloidosis. Due to the complexity of amyloidosis, centralised expert providers with experience in delineating the nuances of confirmatory diagnosis and management may be beneficial. There are many potential benefits of a centre of excellence designation for the treatment of amyloidosis including recognition of institutions that have been leading the way for the optimal treatment of this condition, establishing the expectations for any centre who is engaging in the treatment of amyloidosis and developing cooperative groups to allow more effective research in this disease space. Standardising the expectations and criteria for these centres is essential for ensuring the highest quality of clinical care and community education. In order to define what components are necessary for an effective centre of excellence for the treatment of amyloidosis, we prepared a survey in cooperation with a multidisciplinary panel of amyloidosis experts representing an international consortium. The purpose of this position statement is to identify the essential elements necessary for highly effective clinical care and to develop a general standard with which practices or institutions could be recognised as a centre of excellence.</p>","PeriodicalId":12835,"journal":{"name":"Heart","volume":null,"pages":null},"PeriodicalIF":5.1000,"publicationDate":"2024-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Moving towards establishing centres of excellence in cardiac amyloidosis: an International Cardio-Oncology Society statement.\",\"authors\":\"Richard Cheng, Michelle M Kittleson, Ashutosh D Wechalekar, Jose Alvarez-Cardona, Joshua D Mitchell, Ariane Vieira Scarlatelli Macedo, Joao Pedro Passos Dutra, Courtney M Campbell, Jennifer E Liu, Heather J Landau, Margot K Davis, Siobhain Morrissey, Stephen Casselli, Isabelle Lousada, Juliane Dantas Seabra-Garcez, Roberta Shcolnik Szor, Sarju Ganatra, Barry Trachtenberg, Mathew S Maurer, Keith Stockerl-Goldstein, Daniel Lenihan\",\"doi\":\"10.1136/heartjnl-2023-323502\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The prevalence of amyloidosis has been increasing, driven by a combination of improved awareness, evolution of diagnostic pathways, and effective treatment options for both transthyretin and light chain amyloidosis. Due to the complexity of amyloidosis, centralised expert providers with experience in delineating the nuances of confirmatory diagnosis and management may be beneficial. There are many potential benefits of a centre of excellence designation for the treatment of amyloidosis including recognition of institutions that have been leading the way for the optimal treatment of this condition, establishing the expectations for any centre who is engaging in the treatment of amyloidosis and developing cooperative groups to allow more effective research in this disease space. Standardising the expectations and criteria for these centres is essential for ensuring the highest quality of clinical care and community education. In order to define what components are necessary for an effective centre of excellence for the treatment of amyloidosis, we prepared a survey in cooperation with a multidisciplinary panel of amyloidosis experts representing an international consortium. The purpose of this position statement is to identify the essential elements necessary for highly effective clinical care and to develop a general standard with which practices or institutions could be recognised as a centre of excellence.</p>\",\"PeriodicalId\":12835,\"journal\":{\"name\":\"Heart\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":5.1000,\"publicationDate\":\"2024-05-23\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Heart\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1136/heartjnl-2023-323502\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CARDIAC & CARDIOVASCULAR SYSTEMS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Heart","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1136/heartjnl-2023-323502","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CARDIAC & CARDIOVASCULAR SYSTEMS","Score":null,"Total":0}
Moving towards establishing centres of excellence in cardiac amyloidosis: an International Cardio-Oncology Society statement.
The prevalence of amyloidosis has been increasing, driven by a combination of improved awareness, evolution of diagnostic pathways, and effective treatment options for both transthyretin and light chain amyloidosis. Due to the complexity of amyloidosis, centralised expert providers with experience in delineating the nuances of confirmatory diagnosis and management may be beneficial. There are many potential benefits of a centre of excellence designation for the treatment of amyloidosis including recognition of institutions that have been leading the way for the optimal treatment of this condition, establishing the expectations for any centre who is engaging in the treatment of amyloidosis and developing cooperative groups to allow more effective research in this disease space. Standardising the expectations and criteria for these centres is essential for ensuring the highest quality of clinical care and community education. In order to define what components are necessary for an effective centre of excellence for the treatment of amyloidosis, we prepared a survey in cooperation with a multidisciplinary panel of amyloidosis experts representing an international consortium. The purpose of this position statement is to identify the essential elements necessary for highly effective clinical care and to develop a general standard with which practices or institutions could be recognised as a centre of excellence.
期刊介绍:
Heart is an international peer reviewed journal that keeps cardiologists up to date with important research advances in cardiovascular disease. New scientific developments are highlighted in editorials and put in context with concise review articles. There is one free Editor’s Choice article in each issue, with open access options available to authors for all articles. Education in Heart articles provide a comprehensive, continuously updated, cardiology curriculum.