影响急性淋巴细胞白血病患儿父母生活质量的因素:雅加达国际儿童癌症基金会的一项研究

Michelle Trisya, Francisca Tjhay, S. Hasan, N. T. Widjaja
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引用次数: 0

摘要

背景:急性淋巴细胞白血病(ALL)等慢性疾病的诊断和管理对父母的生活质量意义重大。此外,子女患急性淋巴细胞白血病的父母的生活质量也受多种因素影响,包括特征、育儿时间、心理健康和家庭功能。因此,本研究旨在确定影响雅加达国际儿童癌症基金会(Childhood Cancer International Foundation)患儿父母生活质量的因素。研究方法这项横断面研究在国际儿童癌症基金会招募了 109 名家长作为受访者。使用的评估工具包括特征问卷、自评问卷-20、APGAR 问卷和 WHOQOL-BREF 问卷。此外,还对收集到的数据进行了单变量、双变量和多变量分析。结果在平均年龄为 38 岁、平均育儿时间为 28 个月的 109 名受访者中,66.1% 为女性,100% 信仰上帝,73.4% 有伴侣,47.7% 接受过高等教育,83.5% 的收入低于地区最低工资标准,66.1% 有心理健康问题,11.9% 有家庭功能障碍。双变量分析显示,性别、心理健康和生活质量之间存在显著关系(P<0.05)。多变量分析表明,婚姻状况、教育程度、经济状况和家庭功能与生活质量有明显的相关性。结论总之,性别、婚姻状况、教育程度、经济状况、心理健康和家庭功能对抚养 ALL 患儿的父母的生活质量有重要影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Factors Influencing Quality of Life of Parents with Children Affected by Acute Lymphoblastic Leukemia: A Study at Childhood Cancer International Foundation, Jakarta
Background: The diagnosis and management of chronic diseases, such as Acute Lymphoblastic Leukemia (ALL), are significant for the quality of life of parents. In addition, several factors contribute to the quality of life of parents whose children battle ALL, including characteristics, duration of childcare, mental health, and family functioning. Therefore, this study aims to identify factors influencing the quality of life of parents whose children have ALL at the Childhood Cancer International Foundation in Jakarta. Methods: This cross-sectional study recruited 109 parents at the Childhood Cancer International Foundation as respondents. The assessment tools used included a Characteristics questionnaire, Self-Rating Questionnaire-20, APGAR Questionnaire, and WHOQOL-BREF questionnaire. Additionally, collected data were subjected to univariate, bivariate, and multivariate analysis. Results: Among the 109 respondents with an average age of 38 years and mean childcare duration of 28 months, 66.1% were females, 100% believed in God, 73.4% had partners, 47.7% possessed higher education, 83.5% earned below the regional minimum wage, 66.1% experienced mental health problems, and 11.9% had family dysfunction. Bivariate analysis showed a significant relationship between gender, mental health, and quality of life (p<0.05). Multivariate analysis showed that marital status, education, economic status, and family functioning significantly correlated with quality of life. Conclusions: In conclusion, gender, marital status, education, economic status, mental health, and family functioning were found to exert a significant influence on the quality of life of parents raising children with ALL.
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