个体遗传和基因组学研究结果的反馈:乌干达基层社区的定性研究

Joseph Ochieng, Betty Kwagala, John Barugahre, Marlo Möller, Keymanthri Moodley
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引用次数: 0

摘要

遗传学和基因组学研究(GGR)面临着一些挑战,包括但不限于与参与者及其家庭成员分享研究成果的影响,保密问题,确定向被测试个体提供遗传或基因组信息的适当方法,以及从样本中获得的DNA的所有权。此外,GGR具有社会和心理危害的重大潜在风险。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Feedback of Individual Genetic and Genomics Research Results: A Qualitative Study Involving Grassroots Communities in Uganda
Background Genetics and genomics research (GGR) is associated with several challenges including, but not limited to, implications of sharing research findings with participants and their family members, issues of confidentiality, determining appropriate methods for providing genetic or genomic information to individuals tested, and ownership of DNA obtained from the samples. Additionally, GGR holds significant potential risk for social and psychological harms.
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