通过数字健康实现正义和赋权:伦理挑战与机遇

Philip J. Nickel, Iris Loosman, Lily Frank, Anna Vinnikova
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引用次数: 0

摘要

数字创新可以让人们掌控自己的健康,这一主张一直伴随着关于赋权的大量讨论。在本文中,我们考虑的伦理挑战和机会,试图实现正义和授权使用数字健康倡议。赋予权力的语言可能误导性地暗示,通过使用技术,人们可以控制自己的健康,并在比现实或公平更大的程度上对健康结果负责。此外,数字健康赋权往往主要惠及已经具备高技术和健康素养的人,而将其他人抛在后面。我们批判性地调查了是否可以重新设计健康赋权的概念,使其具有不同的含义,即根据最近关于为司法服务的概念工程的建议,改善最不具备健康素养的人的健康素养和获得健康素养的过程。我们得出了一个较弱的结论,即包括正义在内的潜在伦理价值应该被用来解释现有的赋权概念。综上所述,我们对实现与数字健康赋权相关的伦理价值的各种策略进行了高层分析。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Justice and Empowerment Through Digital Health: Ethical Challenges and Opportunities
Abstract The proposition that digital innovations can put people in charge of their health has been accompanied by prolific talk of empowerment. In this paper we consider ethical challenges and opportunities of trying to achieve justice and empowerment using digital health initiatives. The language of empowerment can misleadingly suggest that by using technology, people can control their health and take responsibility for health outcomes to a greater degree than is realistic or fair. Also, digital health empowerment often primarily reaches people who already have high technological and health literacy, leaving others behind. We critically investigate whether the concept of health empowerment could be re-engineered to mean something different, namely the process of improving the health literacy and access of those who least possess it, in line with recent proposals for conceptual engineering in the service of justice. We settle on the weaker conclusion that underlying ethical values including justice should be used to interpret the existing concept of empowerment. To conclude, we take a high-level view of various strategies for achieving the ethical value associated with digital health empowerment.
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