为纪念世界狼疮日,在麻郎市举办美容课,减轻狼疮患者的绝望

C. Wahono, E. Dewi, T. Dantara, Perdana Rahman, K. Handono, N. Nurdiana, Hani Susianti, D. Hasanah, Choirinnisa Meilia Ayu Putri, Nora Ariyanti, H. Kalim
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摘要

狼疮是一种全身自身免疫性风湿性疾病,具有轻微到严重的临床特征,如果治疗不当,可能导致绝望。这次活动的目的是为了纪念世界狼疮日,举办一个美容课程,看看它如何影响狼疮患者的绝望。方法:组织世界狼疮日活动,如狼疮一目了然专家研讨会、与狼疮友好相处、与狼疮保持美丽等;狼疮互助小组以“你是美丽的”为主题的歌舞表演;还有狼疮美容班。该活动于2018年5月的一天内完成,使用Beck绝望量表(BHS)收集狼疮患者绝望发生率的测试前和测试后数据。共有100名狼疮患者参加了这项活动,所有患者都进行了前后测试。采用α=0.05的Wilcoxon sign Rank检验对数据进行分析。结果:所有参与者都对参与本次活动表示满意和愉快。美容课前后BHS平均分分别为8.62+2.68、6.36+1.59,差异有统计学意义(p=0.000)。结论:美容课是一种有趣的方式,可以减少狼疮患者对疾病的绝望。每年都需要举办纪念世界狼疮日的活动,这对狼疮患者是有益的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
REDUCING LUPUS PATIENTS' HOPELESSNESS THROUGH BEAUTY CLASS IN MALANG CITY IN HONOR OF WORLD LUPUS DAY
Lupus is a systemic autoimmune rheumatic disease with mild to severe clinical features and can lead to hopelessness if not treated properly. The purpose of this activity is to give a beauty class and see how it affects the hopelessness of lupus patients in honor of World Lupus Day. Methods: Organizing World Lupus Day activities such as experts seminars on lupus at a glance, being friendly with lupus, and staying beautiful with lupus; a musical drama and dance performance by a lupus support group with the theme “You Are Beautiful”; and a lupus beauty class. The activity was completed in one day in May 2018 by collecting pre-test and post-test data on the incidence of hopelessness in lupus patients using the Beck Hopelessness Scale (BHS). A total of 100 lupus patients participated in the activity, and all of them underwent pre- and post-testing. The Wilcoxon Signed Rank Test with α=0.05 was used to analyze the collected data. Results: All participants expressed delight and satisfaction with their participation in this activity. The mean BHS scores before and after the beauty class were 8.62+2.68 and 6.36+1.59, respectively, with a significant difference (p=0.000). Conclusion: Beauty class is a fun way for lupus patients to feel less hopeless about their illness. Every year, an activity to commemorate World Lupus Day is required, which is beneficial for lupus patients.
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