一遍又一遍:继续呼唤自闭症的声音

Ryan Collis
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引用次数: 2

摘要

作为一名在读硕士学位的自闭症学生,我关注的是如何理解专业知识。我特别感兴趣的是如何在没有自闭症患者参与的情况下制定教育政策。我查阅了用于做出这些决定的文献,并采访了自闭症患者,了解他们对自闭症专家的看法。我发现,推动政策的专家几乎没有或根本没有自闭症或自闭症患者的直接经验,他们与他们推荐的方法没有任何个人联系。我认为自闭症患者必须参与研究设计、执行、实施、传播和政策决策。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Over and Over and Over: A Continued Call for Autistic Voices
As an Autistic student in a master’s degree, I focused on the way expertise is understood. I was specifically interested in how policy decisions in education were made without Autistic involvement. I looked at the literature that was used to make these decisions and interviewed Autistic people as to their thoughts on who should be considered experts when it comes to autism. I found that policy was driven by experts who had little to no direct experience with autism or Autistics and who had no personal connections to the approaches they recommended. I argue that Autistic people must be involved in research design, execution, implementation, dissemination, and policy decisions. 
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