倡导头痛患者

T. Steiner, J. Olesen
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引用次数: 5

摘要

尽管有无可辩驳的证据表明头痛疾病的高患病率、高负担和高成本,但到目前为止,倡导更多的头痛研究和更好的头痛护理在很大程度上是徒劳的。头痛很少得到尊重,也没有什么资源。有科学、公共卫生和财政方面的理由支持变革,这些理由都是基于证据的、合理的。它们发出了令人信服的信息,尽管这些信息尚未达到卫生政策制定者的意识。头痛疾病是所有神经系统疾病中获得资助最少的,但造成的残疾却比所有其他神经系统疾病的总和还要多。这是一个可以补救的失败。全球防治头痛运动的全球活动方案及其与全球疾病负担研究的合作,正在产生支持变革的不可阻挡的证据流。世界卫生组织承认头痛对全球公共卫生的重要性,并承诺在宏观层面为其进行宣传。一种势头正在形成。就目前而言,变革的理由是无法回答的,但必须把它们交给那些能够实现变革的人,并一次又一次地重复。如果他们与这些组织合作,许多国家和超国家的专业和非专业团体将发现,以前关闭的大门最终会慢慢打开。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Advocacy for patients with headache
Despite irrefutable evidence of the high prevalence, burden, and cost of headache disorders, advocacy for headache—for more headache research and better headache care—has been largely in vain so far. Headache receives little respect and few resources. There are scientific, public health, and financial arguments for change, which are evidence-based and sound. They make compelling messages, which nonetheless have not yet reached the consciousness of health policymakers. Headache disorders are the least funded of all neurological disorders, while accounting for more disability than all other neurological disorders combined. This is a remediable failure. The worldwide programme of activities of the Global Campaign against Headache, and its collaboration with the Global Burden of Disease studies, are generating an unstoppable flow of evidence to support change. The World Health Organization has acknowledged the global public health importance of headache, and committed to advocacy on its behalf at macro level. A momentum is building. The arguments for change are, for now, unanswerable, but they have to be put to those who can make change happen, and repeated again and again. If they work with these organizations, the many national and supranational professional and lay groups will find previously closed doors are, at last, slowly opening.
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