在学校管理患有遗传性心血管疾病的儿童

Catherine E Renwick
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引用次数: 0

摘要

易致死性心律失常的遗传性心血管疾病(ICC)越来越多地在儿童时期被诊断出来。管理策略旨在减轻症状和预防猝死,包括日常药物治疗和改变生活方式。孩子们大部分时间都在学校度过。监测和应对症状、确保遵守药物治疗制度以及在发生崩溃时提供挽救生命的治疗的责任由非医疗专业人员承担。应采取战略,支持学校内的非医疗专业人员和保健专业人员,例如可能缺乏照顾受影响儿童经验的学校护士,以确保他们充分了解这种情况及其管理。应支持受影响的儿童充分发挥其学业能力,而不应因此受到不必要的限制或处于不利地位。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Managing children with an inherited cardiovascular condition in school
Inherited cardiovascular conditions (ICC) predisposing to lethal arrhythmias are increasingly diagnosed in childhood. Management strategies aim to reduce symptoms and prevent sudden death, and include daily medications and lifestyle modification. Children spend a large proportion of their time at school. The responsibility for monitoring and responding to symptoms, ensuring medication regimes are adhered to, and providing life-saving treatment in the event of collapse is assumed by non-medical professionals. Strategies to support non-medical professionals within schools, plus health-care professionals, such as school nurses who may have little experience caring for affected children, should be employed to ensure they are well informed about the condition and its management. Affected children should be supported to achieve their full academic ability and should not be limited unnecessarily or disadvantaged as a result.
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