K. C. Kresnye, J. F. Maestre, M. Wolters, K. Siek, Cassie Kresnye, Ben Jelen, Mona Y. Alqassim
{"title":"通过私人社交媒体团体进行研究的经验教训","authors":"K. C. Kresnye, J. F. Maestre, M. Wolters, K. Siek, Cassie Kresnye, Ben Jelen, Mona Y. Alqassim","doi":"10.1145/3290607.3299055","DOIUrl":null,"url":null,"abstract":"As research methods evolve to provide a voice to understudied, distributed communities, we explore our experiences running and analyzing Asynchronous Remote Communities (ARC) studies. Our experiences stem from four separate Facebook-based ARC studies with people who experience: rare disease, pregnancy, miscarriage, or HIV. We delve into these studies' methods, and present updated guidelines focused on improved study design, data collection, and analysis plans for ARC studies.","PeriodicalId":389485,"journal":{"name":"Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems","volume":"67 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2019-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"9","resultStr":"{\"title\":\"Lessons Learned from Research via Private Social Media Groups\",\"authors\":\"K. C. Kresnye, J. F. Maestre, M. Wolters, K. Siek, Cassie Kresnye, Ben Jelen, Mona Y. Alqassim\",\"doi\":\"10.1145/3290607.3299055\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"As research methods evolve to provide a voice to understudied, distributed communities, we explore our experiences running and analyzing Asynchronous Remote Communities (ARC) studies. Our experiences stem from four separate Facebook-based ARC studies with people who experience: rare disease, pregnancy, miscarriage, or HIV. We delve into these studies' methods, and present updated guidelines focused on improved study design, data collection, and analysis plans for ARC studies.\",\"PeriodicalId\":389485,\"journal\":{\"name\":\"Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems\",\"volume\":\"67 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2019-05-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"9\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1145/3290607.3299055\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1145/3290607.3299055","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Lessons Learned from Research via Private Social Media Groups
As research methods evolve to provide a voice to understudied, distributed communities, we explore our experiences running and analyzing Asynchronous Remote Communities (ARC) studies. Our experiences stem from four separate Facebook-based ARC studies with people who experience: rare disease, pregnancy, miscarriage, or HIV. We delve into these studies' methods, and present updated guidelines focused on improved study design, data collection, and analysis plans for ARC studies.