建立和维持基因组学和生物库的合作平台,促进健康创新

Hermann Garden, Naomi Hawkins, D. Winickoff
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引用次数: 2

摘要

基因组和生物库合作平台为新发现和新疗法的发展带来了巨大的希望。本文探讨了基因组学和生物银行带来的复杂的技术、法律和商业挑战,并汇集了来自主要国家和国际平台以及各种专家的想法和最佳实践。生物样本和基因组数据的全球共享对于加快我们对COVID-19的生物学和传播的了解以及开发疫苗和诊断方法至关重要。尽管该领域的一些政策挑战是众所周知的,但由于卫生创新的数字化,加上数据的复杂性和数量的增加,对全球合作的推动,以及对伦理、法律和社会影响的日益认识,这些挑战已经被重新配置。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Building and sustaining collaborative platforms in genomics and biobanks for health innovation
Genomic and biobank collaborative platforms hold significant promise for the development of new discoveries and therapies. This paper explores the complex technical, legal and business challenges arising from genomics and biobanks, and brings together ideas and best practices from major national and international platforms, and from a diverse range of experts. The global sharing of biological samples and genomic data has been critical for accelerating our understanding of the biology and spread of COVID-19, and for the development of vaccines and diagnostics. Although some of the policy challenges in the field are well known, they have been reconfigured by the digitalisation of health innovation combined with the increasing complexity and volume of data, the push for global collaboration, and the growing awareness of ethical, legal, and social implications.
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