用于查找和访问健康数据的NFDI4Health本地数据中心，通过基于seek的平台访问分布式数据

Proceedings of the Conference on Research Data Infrastructure Pub Date : 2023-09-07 DOI:10.52825/cordi.v1i.375

F. Meineke, Martin Golebiewski, Xiaoming Hu, Toralf Kirsten, Matthias Löbe, Sebastian Klammt, Ulrich Sax, Wolfgang Müller

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引用次数: 0

摘要

为了支持联邦数据结构和共享来自临床试验、流行病学和公共卫生研究的敏感健康数据，在德国国家个人健康数据研究数据基础设施(NFDI4Health)的背景下，我们开发了基于FAIRDOM-SEEK平台的本地数据中心(LDHs)。这些ldl连接到德国中央健康研究中心(CSH)，使健康数据可搜索和查找。这种分散的方法支持研究人员使健康研究的数据公平(可查找、可访问、可互操作和可重复使用)，同时充分保护敏感数据的数据保护。

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NFDI4Health Local Data Hubs for Finding and Accessing Health Data Making Distributed Data Accessible Through a SEEK-Based Platform

To support federated data structuring and sharing for sensitive health data from clinical trial, epidemiological and public health studies in the context of the German National Research Data Infrastructure for Personal Health Data (NFDI4Health), we have developed Local Data Hubs (LDHs) based on the FAIRDOM-SEEK platform. Those LDHs connect to the German Central Health Study Hub (CSH) to make the health data searchable and findable. This decentralised approach supports researchers to make health studies with their data FAIR (Findable, Accessible, Interoperable and Reusable), and at the same time fully preserves data protection for sensitive data.

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Proceedings of the Conference on Research Data Infrastructure

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