{"title":"情绪健康和社会支持是影响脑瘫患儿父母生活质量的重要因素","authors":"K. Letovancová, M. Slaná, M. Hromková","doi":"10.20396/sss.v18i0.8656805","DOIUrl":null,"url":null,"abstract":"The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale (\"FQOL\"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the \"Emotional Well-Being\" dimension (13.2551 points) and \"Social Support\" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.","PeriodicalId":446140,"journal":{"name":"Serviço Social e Saúde","volume":"43 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2019-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy\",\"authors\":\"K. Letovancová, M. Slaná, M. Hromková\",\"doi\":\"10.20396/sss.v18i0.8656805\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale (\\\"FQOL\\\"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the \\\"Emotional Well-Being\\\" dimension (13.2551 points) and \\\"Social Support\\\" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.\",\"PeriodicalId\":446140,\"journal\":{\"name\":\"Serviço Social e Saúde\",\"volume\":\"43 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2019-09-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Serviço Social e Saúde\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.20396/sss.v18i0.8656805\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Serviço Social e Saúde","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.20396/sss.v18i0.8656805","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1
摘要
脑瘫患儿的出生对父母来说是一个巨大的挑战,直接影响到他们的生活质量。因此,我们认为关注这个话题是很重要的。为此,我们于2018年开展了脑瘫患儿家长生活质量调查。为了达到我们的目标,我们采用了定量研究策略,并使用了一个有效的研究工具,即标准化的生活质量问卷-家庭生活质量量表(“FQOL”)。受访者的平均得分为94.0918分,表明受访者的生活质量高于预期。对量表各维度的平均分评价显示,受访者在“情绪幸福感”维度(13.2551分)和“社会支持”维度(15.6429分)得分最低。研究进一步证实,被调查者的生活质量在年龄(t = -2.341, p = 0.021)、婚姻状况(F = 3.476, p = 0.019)和地域(χ2 = 15.39, p = 0.031)上存在统计学差异。被调查者的生活质量与脑瘫患儿的年龄有统计学意义(0.288 **,p = 0.004)。尽管得分相对较高,表明受访者的生活质量较高,但研究发现,脑瘫儿童的父母在两个方面的生活质量较低,即他们的情感健康和社会支持。
Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy
The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.