在Covid-19大流行期间,地中海贫血儿童的生活质量得到了改善

Retno Puji Hastuti, Rina Mariani, Sri Ujiani3, D. Sumardilah, Elizar Elizar
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摘要

地中海贫血是一种血红蛋白合成障碍,临床表现为严重贫血。北楠榜共有35名地中海贫血患者,造成了复杂的健康问题,特别是在2019冠状病毒病大流行期间。由于献血者减少,输血供血有限;2. 营养不良导致免疫力下降的问题;3.心理和学校问题;4. 并不是所有北楠榜的地中海贫血儿童都有hb分析作为诊断程序;和5。少用铁螯合药物预防铁血黄素沉着。这项社区服务的目的是在2019冠状病毒病大流行期间改善北楠榜岛地中海贫血儿童的生活质量。社区服务活动采用过程方法(准备、实施、评估),涉及多个专业和相关利益相关者(跨专业合作)。这些活动的对象是地中海贫血儿童和属于北楠榜地区地中海贫血家长协会成员的家庭,共有35人。数据采用比例描述性分析。社区服务活动1。成立由75名永久性献血者志愿者组成的地中海贫血护理社区;2. 开展关于地中海贫血儿童营养需求的健康教育,并向33人提供营养包(94.28%);3.就学校的社会心理问题及学习障碍提供辅导;4. 在HM Mayjend Ryacudu医院的治疗室里提供故事书;5. 23例(65.71%)地中海贫血儿童及其家庭Hb分析和铁蛋白水平的实验室检查及铁螯合治疗的社会化管理在2019冠状病毒病大流行期间,所有活动都按照卫生方案开展。建议:有必要建立一个网络,并将地中海贫血护理社区的成员增加到每一名地中海贫血儿童有六个永久捐助者。这项社区服务活动的创意/价值/意义是北楠榜岛地中海贫血护理网络和社区的形式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Peningkatan Kualitas Hidup Anak Thalasemia Pada Masa Pandemi Covid-19
Thalassemia is a disorder of hemoglobin synthesis with clinical manifestations of severe anemia. With a total of 35 sufferers in North Lampung, thalassemia causes complex health problems, especially during the Covid-19 Pandemic, including 1. The limited blood supply for transfusions due to decreased donors; 2. The problem of malnutrition leading to reduced immunity; 3. Psychological and school problems; 4. Not all thalassemia children in North Lampung had Hb-analysis as a diagnostic procedure; and 5. Low consumption of iron chelation drugs to prevent hemosiderosis. The community service aims to improve the quality of life for thalassemia children in North Lampung during the Covid-19 Pandemic. The Community service activities used a process approach (preparation, implementation, evaluation) involving several professions and related stakeholders (interprofessional collaboration). The target of the activities was thalassemia children and families who are members of the Association of Parents with Thalassemia (POPTI) North Lampung, with a total of 35 people. Data were analyzed with proportional descriptive analysis. The community service activities were 1. Formation of a Thalassemia Care Community consisting of 75 permanent blood donor volunteers; 2. Health education about the nutritional needs of thalassemia children and provision of nutrition packages to 33 people (94.28%); 3. Counseling on psychosocial problems and learning disorders in schools; 4. Facilitating story books in the treatment room of HM Mayjend Ryacudu Hospital; 5. Laboratory examination of Hb analysis and ferritin levels and socialization of the management of iron chelation treatment to 23 people (65.71%) of thalassemia children and their families. All activities were carried out with health protocols during the Covid-19 Pandemic. Suggestion: It is necessary to develop a network and increase the membership of the Thalassemia Care Community to six permanent donors for one thalassemia child. The Originality/Value/ Implication of this community service activity is the formatting of the North Lampung Thalassemia Care Network and Community.
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