在乌干达建立血友病卫星诊所的过程和经验——一份简短报告

P. Kasirye, Agnes Kisakye, A. Nakalyango, Atwiine Barnabas
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引用次数: 0

摘要

在撒哈拉以南非洲的大部分地区,血友病知识和护理在很大程度上是缺失的,需要协调一致的努力,以确保受影响的人获得护理服务。在全球血友病社区的支持下,乌干达血友病基金会与乌干达卫生部合作,建立了8个血友病治疗卫星中心,作为提高认识和改善血友病护理的更广泛行动的一部分。建立卫生保健中心需要六个步骤,涉及政府、医疗保健和社区的利益攸关方,从获得最初的支持到持续的指导和培训后续方案。在过去五年中,在这些外围设施培训了1,700多名保健专业人员,并登记了186名患者。这有助于改善获得医疗服务的机会,但在诊断能力、现有医护人员和采购重组因子产品的设施方面仍存在不足。我们将继续并进一步倡导在政治和设施层面将血友病纳入预算。我们还建议继续加强血友病护理小组,通过指导、联网和动员,在大型公立医院提供诊断支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Processes and experiences of satellite haemophilia clinic set-ups in Uganda – a short report
Abstract Haemophilia knowledge and care are largely missing in much of sub-Saharan Africa and there is a need for concerted efforts to ensure access to care services by affected persons. Haemophilia Foundation Uganda, supported by the global haemophilia community and working with the Uganda Ministry of Health, has set up eight satellite haemophilia treatment centres (HTCs) as part of a wider initiative to raise awareness and improve haemophilia care. Setting up the HTCs has involved a six-step process involving stakeholders in government, healthcare and the community, and ranging from securing initial support to an ongoing follow-up programme of mentorship and training. Over 1,700 healthcare professionals have been trained and 186 patients have been registered at these peripheral facilities over the past five years. This is helping to improve access to care, but there are still shortcomings around diagnostic capacity, available healthcare personnel, and facilities to procure recombinant factor products. We will continue and further our advocacy for budgetary inclusion of haemophilia at political and facility levels. We also propose a continued strengthening of the haemophilia care teams through mentorship, networking, and mobilisation for diagnostic support at large public hospitals.
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