在儿童医疗保健中讨论家长心理健康的障碍和促进因素:抚养先天性心脏病患儿的父母的观点。

IF 1.3 4区 医学 Q3 NURSING
Journal of Child Health Care Pub Date : 2023-09-01 Epub Date: 2021-12-08 DOI:10.1177/13674935211058010
Melanie K Franklin, Allison Karpyn, Jennifer Christofferson, Linda G McWhorter, Abigail C Demianczyk, Cheryl L Brosig, Emily A Jackson, Stacey Lihn, Sinai C Zyblewski, Anne E Kazak, Erica Sood
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引用次数: 0

摘要

本研究旨在确定先天性心脏病(CHD)患儿家长在儿童医疗保健过程中讨论家长心理健康的障碍和促进因素。在美国 40 家医院接受治疗的 79 名先天性心脏病患儿的家长回答了有关与孩子的医疗服务提供者讨论其心理健康的障碍和促进因素的问题。我们采用定性研究方法对家长的回答进行了分析。家长们描述了多种障碍:(1)认为家长心理健康支持超出了医疗团队的工作范围;(2)认为需要 "保持坚强";(3)害怕负面评价或打击;(4)个人对沟通/支持的偏好;(5)希望保持对孩子的护理资源;(6)认为需要隔离情绪;以及(7)对过去情绪披露的负面反应。家长们还描述了几种促进因素:(1) 对护理团队提供支持的能力有信心;(2) 护理团队有意识地提供支持;(3) 天生的外向倾向;(4) 与医疗服务提供者建立个人联系。重要的是,医疗服务提供者应将儿童疾病对家庭的影响正常化,并创造一种环境,让家长在讨论心理健康挑战时感到轻松自如。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.

This study aimed to identify barriers and facilitators to discussing parent mental health within child health care for parents of children with congenital heart disease (CHD). Seventy-nine parents of young children with CHD who received care across 40 hospitals in the United States responded to questions about barriers and facilitators to discussing their mental health with their child's health care providers. Responses were analyzed using qualitative research methods. Parents described multiple barriers: (1) belief that parent mental health support was outside the care team's scope of practice, (2) perceived expectation to "stay strong," (3) fear of negative judgment or repercussion, (4) individual preferences for communication/support, (5) desire to maintain care resources on their child, (6) perceived need to compartmentalize emotions, and (7) negative reactions to past emotional disclosure. Parents also described several facilitators: (1) confidence in the care team's ability to provide support, (2) intentional efforts by the care team to provide support, (3) naturally extroverted tendencies, and (4) developing personal connections with health care providers. It is important that health care providers normalize the impact of child illness on the family and create an environment in which parents feel comfortable discussing mental health challenges.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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