糖尿病患者及其护理人员的耻辱感:综述。

IF 3.5 4区 医学 Q1 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Perspectives in Public Health Pub Date : 2024-07-01 Epub Date: 2023-01-12 DOI:10.1177/17579139221136725
R Kaur, A K Sinha
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引用次数: 0

摘要

目的:现有文献中的大量研究表明,与许多疾病、残疾和失调有关的成见是存在的,但对与糖尿病有关的成见关注较少。本文献综述旨在探讨 1 型糖尿病(T1DM)是否存在成见:方法:使用搜索引擎、Google Scholar、PubMed 和 Scopus 电子数据库对 2000 年至 2020 年发表的文献进行检索。纳入的研究既有定性研究,也有定量研究,重点关注与 T1DM 相关的污名化问题。共有 21 篇文章符合纳入标准。对收集到的研究材料进行了主题分析:结果:研究结果提供了大量证据表明,T1DM 患者及其护理人员在其生命的某个阶段经历过与 T1DM 相关的成见,这种成见在不同领域影响了他们的生活,如难以找到配偶、在就业机会、教育机构、疾病管理方面受到歧视、被误认为是吸毒者、患者和护理人员的生活质量低下、患者父母出现抑郁症状、不断担心子女的疾病管理等:与 T1DM 相关的污名化在患者中普遍存在。它不仅影响患者,也影响他们的亲人。为了减少和应对成见,有必要在大众层面加强公众教育和提高公众意识。进一步的研究和宣传将有助于加深我们对糖尿病相关成见的理解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perceived stigma among diabetic patients and their caregivers: a review.

Aims: Considerable number of studies in the existing literature indicate the existence of stigma related to many diseases, disabilities, and disorders, but less attention has been given to diabetes-related stigma. This narrative review of literature aims to explore the existence of stigma surrounding type 1 diabetes mellitus (T1DM).

Methods: Literature were searched using search engines, Google Scholar, PubMed, and Scopus electronic databases published from year 2000 to 2020. Both qualitative and quantitative studies focusing on the stigma associated with T1DM were included. A total of 21 articles met the inclusion criteria. Thematic analysis of collected research material was done.

Results: Results provided substantial evidence that stigma associated with T1DM was experienced by T1DM patients and their caregivers at some point in their lives and it had affected their lives in different domains such as difficulty finding a spouse, discrimination at employment opportunities, educational institutions, management of disease, being misjudged as a druggie, poor quality of life of the patient and caregiver, depressive symptoms among parents of patients, constant worrying of their child's disease management, and so on.

Conclusion: Stigma related to T1DM is experienced by individuals suffering from it, and it is widespread. It not only affects the sufferers but their loved ones also. To reduce and cope-up with stigma, there is a need to increase public education and awareness at a mass level. Further research and awareness will serve to build our understanding of the experience of diabetes-related stigma.

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来源期刊
Perspectives in Public Health
Perspectives in Public Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
4.50
自引率
1.70%
发文量
74
期刊介绍: Perspectives in Public Health is a bi-monthly peer-reviewed journal. It is practice orientated and features current topics and opinions; news and views on current health issues; case studies; book reviews; letters to the Editor; as well as updates on the Society"s work. The journal also commissions articles for themed issues and publishes original peer-reviewed articles. Perspectives in Public Health"s primary aim is to be an invaluable resource for the Society"s members, who are health-promoting professionals from many disciplines, including environmental health, health protection, health and safety, food safety and nutrition, building and engineering, primary care, academia and government.
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