患者和非正规护理人员参与研究框架》（PAICPAIR）第 2 部分。

IF 1.6 4区医学 Q2 NURSING

Advances in Nursing Science Pub Date : 2024-04-01 Epub Date: 2022-12-29 DOI:10.1097/ANS.0000000000000474

Katrine Staats, Ellen Karine Grov, Oscar Tranvåg

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引用次数: 0

摘要

在此之前，我们介绍了 "患者和非正规护理者参与研究 "框架第一部分（PAICPAIR 第一部分）的发展，以及如何在 "带着尊严死去 "的实证研究中实施该框架。现在，我们介绍 PAICPAIR 第 2 部分中的选择和经验，强调 PAICPAIR 作为一个可修改、可调整的框架是如何指导我们的，并特别强调要识别和满足弱势核心研究者的个人需求。在未来的研究中，该框架可作为一种方法论和研究设计，并激励研究人员将接受姑息关怀的患者和非正式照护者作为核心研究者。

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Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 2.

Previously, we described the development of the first part of the framework of Patient and Informal Caregiver Participation in Research (PAICPAIR part 1) and how it was implemented in the empirical study Dying With Dignity . Currently, we present our choices and experiences gained in PAICPAIR part 2, highlighting how PAICPAIR guided us as a modifiable and adaptable framework, with a particular emphasis on identifying and meeting the individual needs of our vulnerable coresearchers. This framework can be used as a methodological approach and study design in future research and inspire researchers to include patients receiving palliative care and informal caregivers-as coresearchers.

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来源期刊

Advances in Nursing Science 医学-护理

CiteScore

2.80

自引率

6.20%

发文量

审稿时长

>12 weeks

期刊介绍： Consistently ranked as one of the most-read and most assigned journals by faculties of graduate programs in nursing, Advances in Nursing Science (ANS) is intellectually challenging, innovative and progressive, and features articles from a wide range of scholarly traditions. The journal particularly encourages works that speak to the need for global sustainability and that take an intersectional approach, recognizing class, color, sexual and gender identity, and other dimensions of human experience related to health. Articles in ANS are peer-reviewed and chosen for their pioneering perspectives and for their significance in contributing the evolution of the discipline of nursing.