拉美裔和黑人社会文化背景下家长对自闭症谱系障碍的看法:系统回顾。

IF 1.9 4区 医学 Q1 EDUCATION, SPECIAL
Karla Rivera-Figueroa, Nana Yaa A Marfo, Inge-Marie Eigsti
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引用次数: 0

摘要

自闭症谱系障碍(ASD)患儿的家长在获得诊断和治疗服务方面面临挑战;这些挑战因种族、民族和文化而异。本系统综述研究了拉美裔和美国黑人社区中家长对自闭症谱系障碍的看法。研究结果表明,与家庭和宗教团体的相互联系促进了积极的应对方式,并描述了有 ASD 患儿所带来的积极影响。与白人家庭相比,社区成员报告称,他们获取信息的渠道减少,对 ASD 的认识更不准确,与 ASD 相关的耻辱感更高,与医疗服务提供者的合作经历更消极,这些都加剧了医疗服务的不平等。少数群体在研究中的代表性不足限制了结论的得出。我们呼吁努力满足少数种族和民族的特殊需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review.

Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review.

Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious groups promoted positive coping and describe positive impacts of having a child with ASD. Relative to White families, community members reported reduced access to information and more inaccurate beliefs about ASD, higher levels of ASD-related stigma, and more negative experiences with healthcare providers, which serve to exacerbate healthcare disparities. Conclusions are limited by an underrepresentation of minority groups in research. We call for efforts to address the specific needs of racial and ethnic minorities.

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来源期刊
CiteScore
3.10
自引率
4.80%
发文量
47
期刊介绍: The American Journal on Intellectual and Developmental Disabilities (Print ISSN: 1944–7515; Online ISSN: 1944–7558) is published by the American Association on Intellectual and Developmental Disabilities. It is a scientifi c, scholarly, and archival multidisciplinary journal for reporting original contributions of the highest quality to knowledge of intellectual disabilities, its causes, treatment, and prevention.
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